New here and epilepsy suspected

[Hockeyandringettemom]

Whoa I'm not even sure where to start. I type this with tears streaming down my face because I know there is a chance that someone will read this and understand at least a little of what I'm going through. So to be as short and to the point as possible: I've had about 6 seizures in the last 3 years the last 2 being this past Thursday 3pm sitting on couch and 8:30pm while driving. Luckily I felt it coming started to pull over and my 17 year old took over and turned car off but I am now scared out of my mind. I have had every test you can name incl cat scan MRI 4 eegs every heart test its all been normal. I had a positive tilt table test done for fainting back in Feb and everyone was happy to call the episodes faints with seizure symptoms. Thursday scared me so much that I spent the whole weekend depressed and on the internet looking up every epilepsy and fainting site I could find and from what I read I have epilepsy not fainting. I see the neurologist on Thursday afternoon and want to ask her for epilepsy meds but am a little concerned that if I'm wrong and they are faints or I'm having stress seizures the meds will do more harm than good. Any thoughts from all the wise people in the know out there?

 

[jyearta]

Welcome,

I'm no Dr. So I can't say if what you are experiencing is in a seizure or not.

I have partial and complex, I do not have the fainting.

you might want to start a diary, noting anything and everything that is out of the norm.

There are many triggers, lack of sleep, stress, infection, antibiotics, some foods and more.

We each react diff. to the meds. and triggers also.

 

[LisaBee]

Hi! Welcome to CWE! Last summer I felt like you did, deserate to reach another person who could relate to what we were going through (my daughter has Epilepsy) and of all the sites I pleaded to, this one had the most and quickest replies. Love it here. Im sorry to hear you are having a rough time with these seizures. The one thing I have learned is that you can very much have clear EEG's, CT and MRI's and have Epilepsy. Sometimes its difficult to catch a seizure on EEG because they may originate too deep in the brain. The positive tilt table test is an indicator that it may not be Epilepsy though. Hopefully your Neuro can give you some good advice on where to go with this next. Try to stay calm as best you can, stress is a big trigger for seizures also for some people. Last year I didnt think Id get through the day much less weeks and months but Im here and have adjusted to our new world. You will be ok. Keep us posted.

 

[Intothatendlessblue]

Hello,

My own situation is different to yours, but the need is the same... that need to know that you are not alone. Its hard to face all the tests and the uncertainty on your own, so know that you have so much support. CWE is full of people who have been where you are, you know how it feels to be scared and feel like you are the only person in the world who has ever felt this way, but together they form an excellent support and a wonderful base of knowledge. I am so sorry that you are going through this. My thoughts are with you.

-Mary
:e:

 

[huskymom]

I hope you are able to find an answer soon. Did your doctor give you a reason why he/she thinks you faint? I would think that you would be on some type of medications. Remember, just because you have had a "normal" eeg, that is not the end all of diagnostic tools. A lot of us at one time or another have had normal eeg's. I will keep my fingers crossed for you that you find some relief soon

 

[marty]

Gday ,

i found it very hard when i first started to get siezures at 40 i was very frightend and i would cry too ( hey i am a bloke with a truck and i was crying ) , but then i was talking to a fella that had been through alot and he told to me " if you yourself can`t fix it don`t worry about it " the worry will only stress you not help you ! and that helped me alot , i now think " bugga epilepsy " and get on with life ! you can still have a great life if you do have epilepsy , try not to get too stressed you may not have epilepsy ! just wait and see what the doc has to say .

have a great day

 

[Fifi]

It's hard not knowing, but I hope that you will find some answers at the neurologist. I have a history of tonic clonic seizures, but I also had fainting spells as well. I had a positive tilt table test. I have actually recently discovered that what was causing the changes in homeostasis were complex and partial seizures. That is my story, but I hope you don't stop looking for answers because of the stigma of epilepsy. It does not truly matter what you call it, if you are afraid and don't feel well, you need to continue looking for answers and support. Good luck!