I was diagnosed with simple partial seizures when I was pregnant with my son - he is 18 now. I take 600mg of Lamictal daily. I have never been able to find anyone with the same kind of seizures that I have and it would be wonderful if I could!
When I get a seizure I get confused - I cannot read words or spell them. I cannot say a lot of words - words like the, a, but, etc. are very easy but get beyond that and I"m lost. It's like I've never been able to read. I love to read and read upwards of 100 books a year and I love to write too. During these seizures I can't spell/write either. One morning I had to write a note to school for my child who was out sick the day before. I started writing it - Please excuse Jessi from........ the next word was school and I couldn't say it or spell it. From that point on I couldn't even say the words and very confused about what I needed to write Sometimes I can say the word but still couldn't spell it then if someone told me - S C H O O L - I would have to tell them to slow down and say one letter at a time very slowly. I am SO CONFUSED during these times that everything just feels wrong - all messed up. During these times I couldn't even tell you what my kids' names are, etc. I went on every seizure medication known to man until finally Lamictal helps. I hate the side effects (memory, blurred vision) but it takes the simple partials away except I still get them once or twice a day. My doctor told me "you are as good as you are going to get". I can't work outside of the house because I never know when I will have one. I couldn't imagine being on the phone and have this hit and all of a sudden not be able to understand what they were saying. I have never met anyone who has these types of seizures and I would love to! I also have abdominal seizures but Lamictal has wiped them out entirely.
Sorry if this is too long!! I have a lot of other symptoms but these are the ones that bother me the most.
Rita
When I get a seizure I get confused - I cannot read words or spell them. I cannot say a lot of words - words like the, a, but, etc. are very easy but get beyond that and I"m lost. It's like I've never been able to read. I love to read and read upwards of 100 books a year and I love to write too. During these seizures I can't spell/write either. One morning I had to write a note to school for my child who was out sick the day before. I started writing it - Please excuse Jessi from........ the next word was school and I couldn't say it or spell it. From that point on I couldn't even say the words and very confused about what I needed to write Sometimes I can say the word but still couldn't spell it then if someone told me - S C H O O L - I would have to tell them to slow down and say one letter at a time very slowly. I am SO CONFUSED during these times that everything just feels wrong - all messed up. During these times I couldn't even tell you what my kids' names are, etc. I went on every seizure medication known to man until finally Lamictal helps. I hate the side effects (memory, blurred vision) but it takes the simple partials away except I still get them once or twice a day. My doctor told me "you are as good as you are going to get". I can't work outside of the house because I never know when I will have one. I couldn't imagine being on the phone and have this hit and all of a sudden not be able to understand what they were saying. I have never met anyone who has these types of seizures and I would love to! I also have abdominal seizures but Lamictal has wiped them out entirely.
Sorry if this is too long!! I have a lot of other symptoms but these are the ones that bother me the most.
Rita