Hi Robin,
Alyssa started with Epilepsy 9/1/05 with her one and only T/C. We went to the ER and they put her on Trileptal right away. I immediately learned about seizures from The Epilepsy Foundation, and until Jan. we continued to see partial seizures and continued to up her medication. At the end of Jan, we finally did an EEG, and what the tech saw scared her. She was generalizing all the time, but was not outwardly manifesting the seizures, besides a twitch here and there.
I did not like the Dr. he did not listen to me. We added more Trileptal, added Topamax, and I found a Pediatric Neuro about an hour from me. Alyssa was not controlled when we started with him, but when he lowered the Trileptal, dropped the Topamax and added Lamictal, we had several days seizure free. Her EEG was good, but the MRI showed the lesion in her right hippocampus.
Last year about this time, we stopped the Trileptal completely. We see seizures about two or three times a month, usually simple partials. Once every other month or so we see a Complex partial.
Her migraines are quick, ice pick headaches typically, with all day ones that require sleep about once a month. At this point, we started the Amitriptyline a little over a week ago.
It has been a journey, but isn't that what life is all about?!!