New here:)

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Howlett

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Hi everyone,
My 15 year old (only child) has been diagnosed with Juvenile Myoclonic Epilepsy this week. She had been having absent seizures for about 2 years and our family doctor only thought they were due to hormones. However, this week, she had her first tonic-clonic seizure. And, for us, this was so incredibly scary. We called 911 and for the next 2 days received the most incredible care. She was tested fully and was diagnosed.
So, here I am.....I'm trying to find out at much information as I can, find resources for her especially and most importantly, trying to be realistic and positive about what this means for my daughter. I would love any/all feedback, info, help.
Thanks so much!
 
hello & welcome x
sorry to hear about your daughter x
you've come to the right place, you'll be amazed @ the level of resources, support & understanding you will find on this site x
 
Hi Howlett, welcome to CWE!

You might want to check out this thread by RobinN: http://www.coping-with-epilepsy.com/forums/f32/neurofeedback-rebeccas-story-2733/

It details Robin's persistence in looking at neurofeedback and nutritional apporaches to treating her daughter's seizures. EVen if those approaches isn't right for you, there's a lot to be learned there about being persistent and gathering as much information as possible. And much inspiration too.

You can search for information using the search tab at the top, and of course, post questions as well. CWE members can offer a lot of wisdom and support; we welcome you to our dinner party.

Best,
Nakamova
 
Hi, Howlett,

Welcome to CWE! There are lots of folks in here who have children with epilepsy. I'm so glad you came here for help and advice - you are a great parent!
 
Thank you for welcoming me:) Forums are something completely new to me and I really appreciate your support!
 
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