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Rhianna

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Hi Everyone,

I just found this community and so thankful for it. After almost three years of normal test results and being misdiagnosed with conversion disorder, a neurologist finally saw one of my seizures and said it was a grand-mal. I've had these almost every day, and sometimes, several times a day for the past year. I hated going to the emergency room because they were so mean about it, telling me I was "faking" it. I was so happy when I heard the neurologist 'educate' them when they argued with him about giving me a loading dose of dilantin. I am still having seizures, but they are not as bad or frequent. Has this happened to anyone else?
 
Wow that is disturbing about the hospital thinking you were faking it. That is good that your neurologist stepped in and is helping you. Has he or she put you on any medications yet?
For a long time people thought that I was just passing out until I had a major gran mal and had atrial fibulation due to that seizure. I was lucky and went to a good hospital.
 
The doctor put me on Phenytoin EX 100mg, 4 times a day. I think he said that depending on my levels, he was planning to increase the dose to 5 a day. Is that normal for first starting out? The side effects are wicked, even when taking 3 a day (in addition to the 'loading dose' they gave me in the emergency room). To make matters worse, I'm off of the psych drugs now that it is NOT a conversion disorder (although I think after all of this, psychotherapy may be in order). The withdrawal effects of paroxetine are a double wammy. I am just taking it one day at a time, and struggling to finish my graduate classes I am enrolled in through all this.
 
Welcome both of u to cwe.as to ur question thats prolly only med I havent been on but with all drugs side effects will be different for just about everybody I would continue psych. Depression is epilepsies ugly cousin.
 
Thanks, AC. I'm not depressed. Shocked, frustrated and quite angry, but not depressed. Now that I know what it is, I can begin to deal with it. I won't be able to do a lot of the things I did in the past; however, I am going to continue to work on my master's in industrial-organizational psychology at Capella University. If nothing else, it forces me to use my mind, and may be able to teach online classes when it is all said and done. Thankfully, I have a very supportive family. If anyone needs the psych drugs, it'll be them for putting up with me :).
 
Thats good u are at acceptance already it took me a long time I was a freshmen in h.s. But keepin ur mind going is good distractions is a trigger for me.
 
Welcome and I know how you feel. I had things go back and forth for me. I went to the ER many times in the last 3 years. Same old stuff. They gave me ativan to stabilize me and sent me home. Eventually I just got hostile at a certain point. But I realized that was not helping me or the entire situation at all. I hope that the seizures diminish and you can achieve your goals.
 
The focus on studying is good; however, the distractions and especially external stimuli is something I haven't managed well. My husband took me out to a restaurant the other night and I had to have him sit and face me in a way so that I could turn and focus on him. This was an attempt to shut out what was going on around me.
 
Hi Chop, glad to meet you too. Not sure where in WI you are, but we've been having free air conditioning for the past few days :)
 
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