Hi everyone!
I had encephalitis when I was 6 months old, which left me with epilepsy until I was 5. He doctor thought I would be okay, took me of my meds, and I was until I was 16. I had a few seizures at school before my parents believed it, even though I had told them I didn't feel right. So we went to another doctor, got new meds, and kept trying until we found something I wasn't allergic to. In 2000, my neurologist told me about a vagus nerve stimulator. It was new, but it seemed to work best for complex partial seizures. So that September, I had one implanted and it did drop my seizures significantly (from 3-4/day to 3-10/month). I was still taking a lot of meds.
That neurologist moved away and in June 2017, the new neurologist increased the settings on the VNS and added Lorazepam for breakthrough seizures. I've had fewer since, 7 since 6/26 and a couple were right after finding out by family members' passings. We are looking at replacing the model the next time we need to change the battery; I am sill using the M100. I turns out I was right when I thought my heart rate increased during my seizures.
In addition to epilepsy, I have SLE and blood clots.
I am married to a very supportive man, who started taking me to work with him when he saw my seizures were increasingly accompanied by falls. He's a night auditor at a hotel, so there's a lot of Netflix, Hulu, Amazon each night unless people act really crazy [emoji23]
Sent from my iPad using Tapatalk
I had encephalitis when I was 6 months old, which left me with epilepsy until I was 5. He doctor thought I would be okay, took me of my meds, and I was until I was 16. I had a few seizures at school before my parents believed it, even though I had told them I didn't feel right. So we went to another doctor, got new meds, and kept trying until we found something I wasn't allergic to. In 2000, my neurologist told me about a vagus nerve stimulator. It was new, but it seemed to work best for complex partial seizures. So that September, I had one implanted and it did drop my seizures significantly (from 3-4/day to 3-10/month). I was still taking a lot of meds.
That neurologist moved away and in June 2017, the new neurologist increased the settings on the VNS and added Lorazepam for breakthrough seizures. I've had fewer since, 7 since 6/26 and a couple were right after finding out by family members' passings. We are looking at replacing the model the next time we need to change the battery; I am sill using the M100. I turns out I was right when I thought my heart rate increased during my seizures.
In addition to epilepsy, I have SLE and blood clots.
I am married to a very supportive man, who started taking me to work with him when he saw my seizures were increasingly accompanied by falls. He's a night auditor at a hotel, so there's a lot of Netflix, Hulu, Amazon each night unless people act really crazy [emoji23]
Sent from my iPad using Tapatalk
