Welcome to the community, Maddie!
I'm sorry to hear that you have had such experiences and from what I understand, recently diagnosed. It's never easy for people, I don't think, and it's generally a grieving process to get such a diagnosis.
I remember when I was around 9 years old, things in school weren't going right. These things were always happening at school. I guess it makes sense, though - wasn't able to sleep in, a lot of the times I'd be out of it after waking up, etc.
I hate being hospitalized for issues with seizures. That's only been 3 times in my life, and the last 2 times were more recent. The first time I believe I was about 14-15 years old and I was at school - stopped by the security guard multiple times who kept asking me, "Whoa, whoa! What are you doing?" and would get all annoyed like, "Again? Why are you here again?" after that, I didn't have the same relationship with that security guard I did before. He went from awesome, cool security guard to moron to me. His response was frustration, getting angry at me, and he eventually said, "Follow me." and took me over to the on-duty police officer. I couldn't follow with my eyes correctly and couldn't walk a straight line so that totally meant substance abuse. My backpack was searched (thankfully in a corner of the nurse's office where no one was over there), but he checked that thing thoroughly and didn't find anything. My mom didn't have a choice but to take me to the hospital because they're telling her how I must have been drugged by another student or something. My mom was trying to tell them, "Seizures can look like this, too," but they weren't listening to her and she ended up taking me to the hospital. Ugh.
When I was first diagnosed, my parents were also hesitant of going swimming. My best friend's grandmother had an indoor pool. She made my friend's mom aware and she always kept an eye on me and if she didn't think she would, she'd bring her adult daughter along for an extra set of eyes. On my friend's pool party on time, I went in early to help her set up. I was having a seizure, but it wasn't obvious. I was fuzzy, out of my mind, and couldn't exercise good judgement. My friend's mom was getting frustrated with me because we were curling balloon ribbons and she told my mom later, "She was just so mad at me the whole time, especially when we were setting up." and my mom said, "Yeah, it sounds like she had a seizure." My friend's mom didn't know because I wasn't convulsing so it didn't seem obvious. Thankfully I didn't have any problem as far as the pool went that day. When I was 14 was when the epilepsy started...while I was at school, go figure.
I remember when I was signing classes for I believe my junior year of high school during the end of my sophomore year. I was hanging out with my friends and we were looking through the classes offered. My friend was pressuring me into taking driver's ed, in front of a bunch of our friends. I had told her about my seizures in the 8th grade after I had one in front of her in art class and she didn't know what to do with me, but she wasn't all that sensitive about it and probably didn't understand the laws or remember. She was like, "Let's sign up for driver's ed! Take it with me!" and I said, "No, thank you." and then she's like, "Why do you have to be such a kill joy?! It's an easy A." and I said, "No, I don't want to take driver's ed." and then she pressured more, "Give me your schedule sign up! I'll write it in there!" like...ugh. I never took it, she never got me to, but was mad at me. I always hated it when my siblings were learning to drive. They would hound my parents, "You never take me driving enough! I'll never get enough experience to take the test! Blahblahblahblah." I would always end up yelling at them and saying, "At least you're allowed to learn the drive! I don't know if I will ever drive!" and my parents never stopped me from doing that, maybe it made them realize that driving is a big privilege and maybe not because they still did dumb things after getting their licenses.
I also had my best friend's mom that I felt made fun of my condition a few times when I was in high school...I was horrified...she kept telling people in her girl scout troop my medical condition without asking. There was a time I couldn't go to this surf camp trip. They did have an on-site nurse, but my parents weren't sure how supervised we'd even be and if something happened to me if anyone would notice. They felt it was too much of a chance to take. My father who is a medical professional always told me, "It only takes an inch of water to drown - just enough to block the air way. Some people think you need a whole bathtub or pool full of water and that's simply not true." and then when my best friend came back she told me, "You really didn't miss anything. My feet are peeling so bad after doing all this walking on the sand." and everything. I didn't know if she was bluffing to make me feel better, but the way her feet peeling was nasty. We watched a movie together and her mom came to pick us up and we went to McDonald's and grabbed a bite to eat. It was nice of her to pay for it and I was enjoying my meal with my friend and her mom said, "You should've convinced your parents to let you go to surf camp. The water wasn't even that deep." It still hurts to think about things my best friend's mom said and I'm in my 30s now.
Thinking on my life, having epilepsy as a teenager was absolutely the hardest thing.
People didn't always get it and I was losing friends because of it and I didn't always want to say anything about it because I was embarrassed. I still don't like telling people. Although, at least I'm not in school and can often say, "I'm not feeling well. I'm gonna go." or something and people don't usually question it. It still stinks to get laughed at at the DMV at the time I was 30 and went in to get my permit...and the ladies behind the counter loudly said, "You're how old?!?!" and then later were like, "Well, sweetie. Just come back any time you feel you're ready. I think you're old enough."
I was about to take the driver's test after being 10 years seizure free and the neurologist gave me the go ahead to get off of my medication and I had a normal EEG result and didn't need a follow up. It was a dream...and then I got COVID. So, I never go the chance to get a driver's license. I hope to eventually be able to get one so that way if there was somewhere I absolutely had to be, was feeling well enough, and no one else could give me a ride I could go. I'm still immensely uncomfortable with the idea of driving. I don't think I'd do it often or just because, but on more of an emergency basis.