henigushi
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Hello to all of you. This seems like a wonderful community and I'm happy to be part of it.
I have TLE as a result of thickening of scar tissue from brain surgery that was performed in 1986. The onset of TLE was more than 13 years later. The seizures are simple partial and of two types, a mild version in which my brain attempts to process background noise as speech (the air conditioner, for example, might seem like speech for ten seconds or so) and a more intense version that produces (sometimes extreme) discomfort. I go through periods approximately two weeks in length where I'll have several seizures a day, followed by three or four weeks seizure-free.
The thing that is most difficult for me is that reading is one of my main triggers. Even during a seizure-free period, all I need to do is open a book in the morning and boom, a seizure. I can get around this by waking up my brain with Sudoku or other number games (never language games, like crossword puzzles, which also trigger seizures), but this is only during those periods when I'm less prone to seizures. I've noticed that the less I read, the worse my memory has become, and the poorer my ability to focus. So I am heavily invested in figuring out a way to read again without triggering seizures.
Do any of you have reading-triggered seizures, and any luck with meds or other means of controlling them? Also, has anyone done any kind of systematic analysis on supplements to determine if they reduce seizures? I try to keep everything else consistent and introduce a supplement or behavioral change for a month, and then see if my seizure count changes. No supplements have worked for me thus far. Keeping my stomach and gut happy through healthy eating, fiber, and plenty of water have definitely helped, but I haven't been able to escape these two-week, seizure-intensive blocks of time.
I'd love to learn about what has worked for you, and I'm happy to share more about my own experience with anyone who is interested.
Take care!
I have TLE as a result of thickening of scar tissue from brain surgery that was performed in 1986. The onset of TLE was more than 13 years later. The seizures are simple partial and of two types, a mild version in which my brain attempts to process background noise as speech (the air conditioner, for example, might seem like speech for ten seconds or so) and a more intense version that produces (sometimes extreme) discomfort. I go through periods approximately two weeks in length where I'll have several seizures a day, followed by three or four weeks seizure-free.
The thing that is most difficult for me is that reading is one of my main triggers. Even during a seizure-free period, all I need to do is open a book in the morning and boom, a seizure. I can get around this by waking up my brain with Sudoku or other number games (never language games, like crossword puzzles, which also trigger seizures), but this is only during those periods when I'm less prone to seizures. I've noticed that the less I read, the worse my memory has become, and the poorer my ability to focus. So I am heavily invested in figuring out a way to read again without triggering seizures.
Do any of you have reading-triggered seizures, and any luck with meds or other means of controlling them? Also, has anyone done any kind of systematic analysis on supplements to determine if they reduce seizures? I try to keep everything else consistent and introduce a supplement or behavioral change for a month, and then see if my seizure count changes. No supplements have worked for me thus far. Keeping my stomach and gut happy through healthy eating, fiber, and plenty of water have definitely helped, but I haven't been able to escape these two-week, seizure-intensive blocks of time.
I'd love to learn about what has worked for you, and I'm happy to share more about my own experience with anyone who is interested.
Take care!
