slchase001
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Hello, I am new to this world. I am 36 and had my first tonic clonic March 13th. However, for years I have been having random neurological issues and have been to many specialist. I have had so many diagnosis from lupus to MS to stuff I have never heard of only to have every one of them disbanded and start back at ground 0. I had a 72 hr EEG that was normal last year and an abnormal MRI, but no one really thought it was a big deal. They said I had 2 lesions on my brain but since I ride horses and have fallen off in the past and have migrains it is probably from that. well just had another MRI and pretty much got the same answers!!! I have a new neurologist after my big seizure and he thinks I have been having seizures all this time but, no one could "catch" them. I am on Lamictal XR 50mg a day for another week then I go up to 100mg a day. I am also on Zonagram 200mg a day. Had a 1hr EEG when I was only on Zonagram and it showed 3 seizures so he added the Zonagram. However insurance is saying they r not going to pay for the Lamictal XR and my DR says he does not want me taking generic because there is no xr in the generic. The side effects of the meds r awful. I am having a hard time deciding what is medicine related and what is or could be seizures. I have holes in my memory. like in a day there are parts of the day that I have no idea about. Its like watching tv and the power going off and coming back on randomly. You don't know what happened on the tv show while the power went out but its back on. I am still out of work and can not drive. I am so lost and frustrated because I dont really feel like my Dr. takes me real serious. Any suggestions?