Hello All:
I am a 46 year old female from Toronto who has had seizures since I was 9 weeks old. As an infant they were predominantly febrile convulsions, but as I got older they became more frequent and intense. As a child I was on phenobarb, managed to get off it for a couple of years, then when my teenage years hit the seizures came back with a vengeance. Since then I have tried numerous combinations of medications, none of which would control the seizures. After much thought (and fear) I finally underwent a left temporal lobectomy on July 17th of this year. To date it has been a wonderful success (touch wood) so I truly hope that this will be the solution for me. It's been a long road to get here, but I feel as if I may have finally done it.
My children (who are almost 17 and 14) have had to take the responsibility for me when I would seize in the house once their dad and I separated. It was a lot to ask of kids who were only 9 and 6 at the time, but they learned when they should just leave me alone and when they should call Grandpa and have him come over to check on things. They also knew of a few friends who were on speed dial just in case, and of course 9-1-1.
I'm very proud of what it has taught my boys, although it's a lesson I would have preferred for them to learn a bit later in life.
If anyone out there could use any further information regarding surgery, please feel free to contact me.
Lorraine
I am a 46 year old female from Toronto who has had seizures since I was 9 weeks old. As an infant they were predominantly febrile convulsions, but as I got older they became more frequent and intense. As a child I was on phenobarb, managed to get off it for a couple of years, then when my teenage years hit the seizures came back with a vengeance. Since then I have tried numerous combinations of medications, none of which would control the seizures. After much thought (and fear) I finally underwent a left temporal lobectomy on July 17th of this year. To date it has been a wonderful success (touch wood) so I truly hope that this will be the solution for me. It's been a long road to get here, but I feel as if I may have finally done it.
My children (who are almost 17 and 14) have had to take the responsibility for me when I would seize in the house once their dad and I separated. It was a lot to ask of kids who were only 9 and 6 at the time, but they learned when they should just leave me alone and when they should call Grandpa and have him come over to check on things. They also knew of a few friends who were on speed dial just in case, and of course 9-1-1.
I'm very proud of what it has taught my boys, although it's a lesson I would have preferred for them to learn a bit later in life.
If anyone out there could use any further information regarding surgery, please feel free to contact me.
Lorraine
