Hi, I've just found this site after my partner of 13 years has suffered yet another tonic clonic siezure. He had his first siezure 12 years ago when I was 8 months pregnant with our daughter. His siezures have been averaging 1 or 2 a week since then. He is a tall man and usually hurts himself quite badly.
I can not explain the rush of love that I feel for him during these siezures, it is love so strong because I know how ever much these siezures get him down he always remains positive and hopeful and as soon as he comes round he asks about our daughters and my own safety.
However, at times like now I do feel upset and frustrated, his siezures upset me so much, he is safe in bed now and will sleep for up to 10 hours, when he awakes he will feel groggy, unable to eat due to a bitten tongue, headache from hitting his head on the floor and incredile muscle pain. I hate to see this suffereing and i also worry about the times that i am not with him to ensure his safety, his siezures are so random with only a split second warning, so he has been involved in some very dangerous situations.
A very important mention is our 11 year old daughter, she is the most caring wonderful child that has ever existed. She has saved her daddy's life 7 times now, the 1st time when she was only 3, she rang an ambulance, removed any dangerous objects and timed his siezure. Since then, she has pulled him out of a shower whilst fitting, turned off the gas stove after one of his siezures and always puts him in recovery position.
Well I'm not sure if this is the usual type of intro, but i feel much calmer and less sad even typing this. It makes me realise what a unique and wonderful partner i have, and yes if his siezures could stop we'd all be happier, but he has them and copes well, so I must continue to do the same.
I can not explain the rush of love that I feel for him during these siezures, it is love so strong because I know how ever much these siezures get him down he always remains positive and hopeful and as soon as he comes round he asks about our daughters and my own safety.
However, at times like now I do feel upset and frustrated, his siezures upset me so much, he is safe in bed now and will sleep for up to 10 hours, when he awakes he will feel groggy, unable to eat due to a bitten tongue, headache from hitting his head on the floor and incredile muscle pain. I hate to see this suffereing and i also worry about the times that i am not with him to ensure his safety, his siezures are so random with only a split second warning, so he has been involved in some very dangerous situations.
A very important mention is our 11 year old daughter, she is the most caring wonderful child that has ever existed. She has saved her daddy's life 7 times now, the 1st time when she was only 3, she rang an ambulance, removed any dangerous objects and timed his siezure. Since then, she has pulled him out of a shower whilst fitting, turned off the gas stove after one of his siezures and always puts him in recovery position.
Well I'm not sure if this is the usual type of intro, but i feel much calmer and less sad even typing this. It makes me realise what a unique and wonderful partner i have, and yes if his siezures could stop we'd all be happier, but he has them and copes well, so I must continue to do the same.
