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Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Kirsty McRobert

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Hello, my name is Kirsty I am from Scotland, been diagnosed with epilepsy for 4 years now, I have never even thought about joining a epilepsy page yet looking for some advice online I noticed on this page someone putting a status up about their life situation, their convulsions it was just identical to what I have & am feeling & was really surprised by that, me being in a community where I keep my epilepsy a secret (if I can) is really great!
I have been through some of your posts & have become so grateful for all your truthful & helpful information & hope to learn more on how to cope with my juvenile myoclonic epilepsy. Which I have had a couple of seizures but in the last two years they have stopped but my convulsions have become worse.
 
Welcome, Kirsty! Feel free to spend time here and ask any questions you want, or vent, or share your experiences or whatever. This is certainly a place where you do NOT have to keep your epilepsy a secret. I would encourage you to work toward having it not be a secret in your community, either. Unless your seizures are extremely well controlled, people will start to notice that something is going on with you and they will know, or at least have a strong sense, that you are hiding something. What they all imagine will probably be worse than the truth. My suggestion is to learn all you can about your epilepsy and then just be very calm and factual when you talk to people about it. If you don't make a big deal about it or treat it like it is something that needs to be hidden, then others will be less likely to treat it that way.
Anyhow, welcome! Read and post a lot. This is a good place to be.
 
Hi Kirsty, welcome! Glad you found us. :)
 
Welcome Kirsty! I found everyone here very helpful. Learned more here than I have from my doctor.
 
Oh this is fantastic guys fair loving the advice & normality! I have been putting some of your tips & tricks to the test, time will tell! Thanks folks! Xxxx
 
Hi and welcome. If you stick around here I think you will find what you need. And then some! I know i have and most people will say something like that. It is a safe place. I love it myself. And a few excellent people on here are from/in Scotland. No connection, i am sure, but which part of Scotland? and is it cold there now?
 
Its great, the south west, eh aye it's cold but surprise surprise it's the rain that the worst ha! whats your weather?
 
Dundee. Currently wet but it's usually not bad, the wind on the other hand....Literally had my son beg me not to fly him like a kite (blame winnie the pooh). To be fair he had been blown over. South west is very soggy :P
 
Welcome Kristy! I am glad you have found CWE! It's a wonderful group of people. My daughter also has JME. She was just 14 at diagnosis and will be 16 in 2 weeks. Medicine seems to be keeping the Tonic-clonic away but she has struggled with the morning jerks. We have found sleep to be a necessity and have had luck with changing her diet.

Again, Welcome!
 
Warm welcome to CWE,hope you are finding the the site all you hoped for and more.Thought i would pop bye since i am also from Scotland,good to see fellow scot on here.Honestly though im sure you will love it here,it has been brilliant for me and everyone on the forum is great,hope you decide to stick around,all the best!
 
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