Hi. I found this site with the hopes of gaining some insight with other epileptics about getting off my meds, spirituality, meditation, and psychedelics. I have tried many psychedelics without too much trouble, so feel free to ask me about them as well.
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- Thread starter ThirdEye
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Hi ThirdEye, welcome to CWE!
I think we would all like to get off our meds... I've tried a few times with no luck. Feel free to explore all the forums here. You might want to check out these threads for starters:
http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments
http://www.coping-with-epilepsy.com/forums/f22/eeg-neurofeedback-501/
http://www.coping-with-epilepsy.com/forums/f23/no-meds-seizure-remission-10685/
Best,
Nakamova
I think we would all like to get off our meds... I've tried a few times with no luck. Feel free to explore all the forums here. You might want to check out these threads for starters:
http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments
http://www.coping-with-epilepsy.com/forums/f22/eeg-neurofeedback-501/
http://www.coping-with-epilepsy.com/forums/f23/no-meds-seizure-remission-10685/
Best,
Nakamova
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Hi ThirdEye, welcome 
I developed temporal lobe epilepsy at 21, and have mainly tonic clonic seizures too.
I take lamotrigine, tegretol and keppra and although they help me a bit, I find the side effects to be quite wearisome, and would love to reduce them too.
As Nak said I think it goes without saying we'd all love to reduce our meds lol, unfortunately for most of us it just isn't an option
When you say 'without too much trouble' on psychedelics, do you mean they've induced seizures? Or are you referring to other problems they've caused? I'm also curious to know if you've ever had to deal with a tonic clonic and it's post-ictal effects whilst tripping.
I know a few people whose epilepsy was caused or worsened by psilocybin and other natural psychedelics (as well as others by lots of other drugs) so judging from experience, I'd have to recommend against them as an alternative treatment.
I think we could all do with some meditation though lol - stress seems to be a very common generic seizure trigger..
I developed temporal lobe epilepsy at 21, and have mainly tonic clonic seizures too.
I take lamotrigine, tegretol and keppra and although they help me a bit, I find the side effects to be quite wearisome, and would love to reduce them too.
As Nak said I think it goes without saying we'd all love to reduce our meds lol, unfortunately for most of us it just isn't an option
When you say 'without too much trouble' on psychedelics, do you mean they've induced seizures? Or are you referring to other problems they've caused? I'm also curious to know if you've ever had to deal with a tonic clonic and it's post-ictal effects whilst tripping.
I know a few people whose epilepsy was caused or worsened by psilocybin and other natural psychedelics (as well as others by lots of other drugs) so judging from experience, I'd have to recommend against them as an alternative treatment.
I think we could all do with some meditation though lol - stress seems to be a very common generic seizure trigger..