New Neur. appt. next week - advise

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

jyearta

New
Messages
1,549
Reaction score
1
Points
0
I will be going on the 13th of this month to see another neur.

I have read some good advise concerning this before in this forum, however when I SEARCH I couldn't find it.

SOOOOOO I appreciate any advise when going to see new nero.

I can not seem to get my words out right, (like I do in this forum)
I feel like I have to hurry, cause I only have that 1 hour to tell Dr. about my 40 plus years since diagn.

I know they can only treat me with the info. I give them.

I keep records on every kind of medic. I have been given, date given, dr. who presc. date stopped, side effect. --I don't think they like this???
 
I think the best thing you can do is:

Bring a small writing tablet and make a list of all your questions starting with the ones with the highest priority.....or the most important.:e:
 
Hi Jyearta,

I always find when I have to see my neurologist I have ideas of what to say to them but usually forget before I go into my appt. Here are a few things that have worked for me:

Make sure you take a list of any medications you are on & list any side effects you may have from these meds.

If you keep any type of seizure diary with details on your seizures & what you think may have been triggers take that with you.

As Eve suggested make a list of any questions you may have to ask the neurologist.


Good luck with your appt, hope all goes well.
 
Last edited:
It might be useful to have a both a brief summary of your diagnosis along with a longer history. As CQ says, have a list of any meds and/or supplements you are currently taking, along with dosages and dosage times.

Make sure to mention:
-- Any changes in your seizures
-- If you think your epilepsy treatment is helping
-- Any side effects you might be having
-- How you feel in general
-- What your treatment expectations are, eg, being seizure-free, returning to work, etc.

If the neurologist says something you don't understand, don't hesitate to ask for further explanation. It can help to take someone with you to your appointment to help you remember what the neurologist says. Your questions should include ANYTHING you are concerned about.
 
Thanks you all,

I do take a list of (1)Pres. med.,(2) over the counter medi. (3) as needed medic. with me.

I also take the CD from the MRI from Emory that shows were the epil. is coming from.

I am a very deal person --its more for my memory.
I have put together a (well I don't know what you call it)
I start with the YEAR I was dia. the Dr. who dia., medic., then next Neur., dates, medic. etc. and on it goes.

It is very long and detail.

A friend is going with me, and I am thankful.
 
Back
Top Bottom