Ok hi to every one there i hope ur doing good and can give me some help , im from the middle east so may be my english is not that good , my name is dalia im 36 and a mom of 4 kids the youngest is 2 years , my problem started about nine months ago when i was missdiagnosed with chrohs and took oral cortisone for 2 months finally they said no chrohns . It all started after one week of cortisone i wake up one day and felt like im in dream derealization i thought it was just anixity and it will go but it didnt i started having this constant rising sensation in my stomach it will last for 3 days some time and come on ocassions i feel light headed all the time and nauseous and i see flashes in the dark and som times i feel like where am i . I will wake up in the mid of the night with this stomach feeling and fear that i never have befor im having this EVEry day for nine months and at night ill have severe headache i went to lot of doctors and a neuro i did mri and ct and all blood test its all normal im depressed and i cry everey day i dont want to die and leave my kids no one beleave me and no help i even cant think like befor i left my job and i cant take care of my kids and its NOT anixity because i know how this feel i need help i read about temporal lobe seizure and its only the thing that fit my setuation sepecially the stomach feeling i cant discribe it and i get this cold and hot whater moving in my body also hard to discribe weird sensation and scary! Any one ? Apreceate your help thanx
New there need help ill pray for all of you
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Hi Dalia, welcome to CWE!
Your symptoms do sound like seizures called simple partials. It also sounds like there may be a few different possible causes. If you had something that seemed like Crohn's disease, I assume that means you were suffering from stomach/digestive problems. Often Crohn's or other similar gut-absorption disorders can cause seizures. Have your stomach problems been resolved or are they ongoing? Another possible cause of your symptoms is the cortisone -- seizures are one side effect that can occur with steroids.
You mention having MRI and CT scans. Did you also have an EEG? That would be more useful for diagnosing a seizure disorder. Ask your neurologist (hopefully one who specializes in epilepsy) about having an EEG done -- ideally a longer-term overnight one, since those are more likely to catch the abnormal brainwaves associated with the kinds of symptoms you are experiencing.
In addition, it can be helpful to keep a symptom diary. The diary can help identify patterns and triggers. Triggers can be things like fatigue, or certain foods, illness or infection, low blood sugar, dehydration, hormone fluctuations, stress, etc...
Most importantly, don't give up! If you are having seizures, there are treatments. Push the doctors to help you figure out what's going on. Hang in there.
Best,
Nakamova
Your symptoms do sound like seizures called simple partials. It also sounds like there may be a few different possible causes. If you had something that seemed like Crohn's disease, I assume that means you were suffering from stomach/digestive problems. Often Crohn's or other similar gut-absorption disorders can cause seizures. Have your stomach problems been resolved or are they ongoing? Another possible cause of your symptoms is the cortisone -- seizures are one side effect that can occur with steroids.
You mention having MRI and CT scans. Did you also have an EEG? That would be more useful for diagnosing a seizure disorder. Ask your neurologist (hopefully one who specializes in epilepsy) about having an EEG done -- ideally a longer-term overnight one, since those are more likely to catch the abnormal brainwaves associated with the kinds of symptoms you are experiencing.
In addition, it can be helpful to keep a symptom diary. The diary can help identify patterns and triggers. Triggers can be things like fatigue, or certain foods, illness or infection, low blood sugar, dehydration, hormone fluctuations, stress, etc...
Most importantly, don't give up! If you are having seizures, there are treatments. Push the doctors to help you figure out what's going on. Hang in there.
Best,
Nakamova
Ok thanx so much for your reply you really gave me some relief any way all that started with the stomach problems but i had 2 colonscopy and endoscopy at first they say chrohns and then say no i dont have any stomach problems now but it is intersting to know about the cortisone that it can cause seizure bc it all happend after the cortisone so that make me feel its the trigger do night headache comes with this kind of seizure ? Does this stomach aura can last that long? My derealization is constant this really make me crazy im going to see a new neuro next monday hope i can have a diagnose sick of beeing sick thanx so much for your info its really help god bless
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Everyone has different seizure patterns -- some people have them every day. If they are happening at night and disturbing your sleep, that can make things worse, since fatigue can also trigger seizures. Have you made dietary changes in response to your stomach symptoms? Sometimes those can play a role too.
No i didnt my apitite is getting bad bc all of this but i remember one time i had suchi and it was a terrible night i had lots if auras , but i want to know if i didnt get the good medecation can this turn to more seirious seizure ? I mean convulsion thing?
Sandie
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Poor darling, I really hope you find some answers soon and you can start receiving the treatment you need. The people here on this forum are wonderful and will support you so feel free to ask any questions you want. It is quite scary having symptoms like yours and not knowing what is going on. Most of us on this forum will have experienced similar feelings at some time. Take care and good luck.
Hi dear do you have any kind of seizure? How long is your derealization? I dont take any medication right now
I don't take meds. Right now, the derealization is most of the time maybe only 3 days out of the month is good. I have noticed Sun Spots, Weather, Blood sugar and PMS has an effect on me. I was taking Neurotin but that is how all this started for me. I took it over 10 yrs and then when toxic and had a seizure and was taken off of the meds and now have siezures. It has been my choice to not take any other meds. I have done NFB and it helped but I could not afford it anymore. So, I'm trying to work on my own with meditation and a few suppliments until I can afford to go back or buy NFB again.