New thing going on. FEAR

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jyearta

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This has just been the last couples of months.

I have put off posting this cause I feel crazy. But here goes, I find myself fearful of taking a shower, More so if I have to shave legs and wash hair also.

I WILL NOT GET IN THE SHOWER unless my husband is home.

I have been haveing a lot of problems with shaking, gate if off, (walking into all likes of this.) I don't want to go out anymore.

does anyone know if this could be my E. or medi.

I don't think it is OCD.

I feel silly to be 59 and afraid of my shower.
 
This has just been the last couples of months.

I have put off posting this cause I feel crazy. But here goes, I find myself fearful of taking a shower, More so if I have to shave legs and wash hair also.

I WILL NOT GET IN THE SHOWER unless my husband is home.

I have been haveing a lot of problems with shaking, gate if off, (walking into all likes of this.) I don't want to go out anymore.

does anyone know if this could be my E. or medi.

I don't think it is OCD.

I feel silly to be 59 and afraid of my shower.

I wouldn't feel crazy or silly!
I don't know if it's Epilepsy or medication, but I know what you mean. The summer leading up to me being diagnosed they're pretty sure I was having seizures quite often but no one saw them/heard them (I slept in a different part of the house)-- bear with me, this isn't a soap box I swear! -- and I was absolutely positively TERRIFIED to get into the shower or the bath. :paperbag:
I don't know why, I couldn't tell you even now but at that time being forced into the water nearly caused panic attacks.

Don't feel silly or crazy, that'd mean I was too. It could be your medication in which case you just need to talk with your Doctor about it and see what he says. Or it could be something else like anxiety.

I don't think that helped much but...You're not silly!
 
When I was first on Dilantin, the dose was too high and as a result I was lurching everywhere, and generally walking unsteadily. I felt very fragile and shaky. I would stand at the top of the escalator wondering if I should dare attempt to get on it and ride down. Sometimes the simplest things feel terrifying. If that's a recent thing for you, then I would definitely mention it to your doc to see if you can figure out what's going on, whether it's the meds or something else.
 
Hi! jyearta!

There's nothing wrong with being afraid of such a matter as this. I mean fear comes from all diff. things. I can't say if the sz or the meds is the cause of making the fear hit us all harder. You see I live with my parent's due to my granmal sz. One of my greatest fears is that what would I do if something was ever to happen to my parent's. I mean I know everyone has the fear of ever losing one of their loved ones. It's just that I feel so much fear about this because ever since I've started having these granmals it has always been my parent's and me. I mean I have my brother, sister,neices, and nephews, but they have their own lives. It's funny because my mom likes to use phrases about us three. Such as three peas in a pod, or the three humbty dumpties to family and friends who get a get kick out of it. So my point is that I would be lost without them. Only because they're my lifeline. So don't feel like you're crazy, because then that would mean that I'm crazy too lol just joking. In all reality you made a point about wondering if it could be because of sz. or med. You may want to ask your doc. about that because now I sure am going to. Good luck to you, and God! Bless! You!
 
The fear thing is new to me. The shower was just one example. I was always a people person (don't like being ALONE)

I find myself fearful that something will happen to my husband, he is so understanding and there for me.
We have been married for 41 years, the other day when he took me to the NEW neur. I just knew He was going to take to a mental hospital and leave me. He Has never said or did anything to make me think this, but for so reason I JUST KNEW that was what was going to happen. I kept my head turn to the window, hoping he wouldn't see me crying I could not help it. But he did see, and ask me, I didn't answer for a while then I told him. He asked WHY would I ever think such a thing. I guess I feel like he is tried of all this. (This really does sound like a pity party, BUT this is what I'm feeling.

My dilantin (levels where high) and was decreased.

Nak. was dilantin that causes your fear, I am ding the same in stores now.
Was your dilantin at a high level or did you have to change med. all together.

By reducing dilantin, I'm hoping this will take care of it.

I have not any luck with alot of the other medic. again I scared to try.

I decorate homes, I love doing it and love being in stores to shop and being around people. I have put people for a while now.
 
I did end up reducing the Dilantin levels down by half, and that definitely helped with both the unsteadiness and the fear. I was fine on the Dilantin then in terms of seizure control and tangible side effects, but eventually I shifted off of it because of the potential effects on bone health. (I'm currently on Lamictal.)
 
Thank, I have tried that med. too, but couldn't handle side effects.

I just found a compound Phar. in the next town from me. I know or think they have nothing to do with making seizure medic.
They can help in making some over the counter items, that I can't take. We'll see.:rock:

I don't how they work, I called them yesterday, I know I do need something for my bones, can't take calc. or Vit. D they both cause seizures.

I would try another E. Medi. but I have such BAD exper. with them.

I might have to change over, but each time I think about it my FEAR goes off the charts.
 
jyearta,

Epilepsy itself can cause all kinds of fears, depending on where the seizures are coming from in the brain, as can the meds. I was on Dilantin years ago, but I don't recall the fear factor with that medication but I do remember experiencing it when on Felbatol and a few other meds. Also, when experiencing "auras" sometimes the fear is so numbing.
It sounds like this could be anxiety from not knowing when a seizure may happen.

From:
http://www.epilepsy.com/EPILEPSY/behavior_personalitychanges
Anxiety disorders

Probably the next most common psychological disorders involve anxiety. Anxiety and epilepsy are so closely linked that seizures sometimes are mistaken for panic attacks in those who have never had seizures before.

About 4% of the general population has generalized anxiety disorder, a constant state of tension or worry. Again, the number is much higher for people with epilepsy. It's possible that this disorder is caused or made worse by seizures. Anxiety disorders have been associated with the amygdala, a structure in the front part of the temporal lobe. The seizures of temporal lobe epilepsy frequently affect the amygdala and cause it to act in different ways. Anxiety can also be directly related to the possibility of seizures. Not knowing when a seizure may occur can increase worry about having one in an embarrassing or dangerous situation.

Certain kinds of people are more susceptible to anxiety disorders. Genetic influences and a person's response to stress may play a part in their development. Women are more likely than men to have anxiety disorders, and patients with nonepileptic seizures also have higher rates of anxiety. The presence of auras involving fear has been linked to anxiety disorders; in patients who had the front part of their temporal lobe removed, only those who previously had fear auras continued to have anxiety disorders after surgery.

If you have problems with anxiety, talk to your doctor. There are medications that are effective for anxiety, and some seizure medicines are known to have an anti-anxiety effect.
 
Thanks.
I haven't had a seizure since March of this year. It seem when given a diff. medic (for like the flu) anything new to my system I then will have a seizure.

I on Dilantin and klonpin - and with these two I do not Have the bad depression I've exper. on some of the others.

I also don't experience insomnia (which will bring on a serizure.) I had that side effect from other medic.

So I was trying to stay with these two.

It just been the last year or so I starting have shakiness, that I now use a walk cane.

However after some of the other post it sounds like Dilantin side effect is shakiness.

I have Temporal Lobe Epilepsy. I was on the internet trying to find out is there one medci. that is best for the diff. type of seizure one has.

I am being to think that all these fears I have going through--could be my own doing. Meaning I know I most likely need to change medic. there again is the fear, and I know we have all been there.

I just to try to get some infor. before I have a Dr. just give the NEW one, the one the phar. comp. just gave him.
 
Plasticity - culmulative effective

Hi jyearta,

First let me apologize for the length of this post. It's just that it's hard to explain this to the best of my ability without the post becoming lengthy, especially because I like to use graphics/images. So here goes: :embarrassed:

Your increased fears may be attributed to your meds, which may be contributing to your negative thinking (fear), which then wires your brain with more neural pathways. A process of elimination (yet again) might be necessary or some adjustment. I know you are concerned about this, understandably so, but it also may not be med related but rather a culmulative effect over time, and it's becoming more noticeable. Our brain is very plastic, as you are aware, so any kind of worry can increase plasticity that might enhance networking and extra electrical activity in areas that encourage fear, i.e., the right amygdala, left hippocampus. I also have TLE, so I can really relate to unusual fear activity. Reading that you are a decorator tells me that you may be more right brain dominate, but one doesn't have to be right brain dominate to experience fear and anxiety, certainly. However, studies have shown that too much right hemisphere activity tends to lead to depression, and women also tend to be more prone to worry because we have a thicker corpus callosum by 38%. That gives us greater access to specific regions of the right hemisphere. We also tend to be big picture thinkers due to this default, if you will. This easy access can also exacerbate fear when our imagination or negative thinking gets the best of us.

CorpusCallosum222-1.jpg


When a person utilizes techniques, i.e. mindfulness, visualization, guided imagery, neurofeedback and/or cognitive therapy, etc., on a regular basis, the idea is to wire to specific regions both on the right and the left, to integrate both hemispheres, and to atrophy or neutralize networks and pathways that are disadvantageous. fMRI research shows that Buddhist meditators use different areas of the brain than other people. Meditation has, for the most part, been predominately a practice in male circles throughout the centuries. Male brains tend to be more left hemisphere dominated (not always i.e., the artistic - musician type), especially during puberty due to the flood of testosterone. When they are little boys, their CC is much thicker, around the same thickness as females. Testosterone thins the corpus callosum. When they meditate, pray or use mindfulness, visualization techniques to wire to the right, thickening their CC & Insula as well. They get in touch with their 'feminine' side as the term has been coined. They are increasing the nerve connections between the two hemispheres (Integration) and are able process more information between both hemispheres. This also increases empathy and connection with others, 'right thinking', if you will excuse the pun. The advantage of neurofeedback and mindfulness techniques are that they can help one learn to regulate the emotional centers (lower electrical activity) so that they do not overexcite the right amygdala and/or the left hippocampus while creating deep beneficial circuitry (plasticity).

In my next post, I'll show some mapping of the right and left hemisphere and share a mindfulness video that explains the benefits and necessity of both hemispheres and why brain balance is beneficial, health wise. According to the studies and stats, females are twice as likely to experience depression than males. We can tend to become too self-reflective due to the nature of our brain. Again, this may not always be the case with females, but we sort of have a default, if you well, due to having the natural ability to access specific regions on the right more easily. Just as some male brains may require more wiring to the right, female brains may also requiring some wiring to the left.

Psychology Today:
"When there is any pause in our daily activities, many of us are flooded with worries, thoughts and emotions that swirl out of control, sucking our emotions and energy down, down, down. We are suffering from an epidemic of overthinking—caught in torrents of negative thoughts and emotions that overwhelm us and interfere with our functioning and well-being." Source: Trapped in Reflection

When one is experiencing fear/anxiety, the symptoms dont just exist in the mind. There is an obvious physical - mind/body process going on and one can become flooded with biochemicals that are not pleasant or healthy in abundance, i.e., adrenaline and cortisol, (when not necessary, becomes toxic). The brain and body doesn't know what thoughts are a real threat and what thoughts are from our imagination/thoughts...it simply reacts to what it perceives as a threat, something we evolved over time (reflex - fight or flight) in times of real danger. The brain/body simply reacts to the thoughts brought on by our perception(s). This is where becoming an impartial spectator will be beneficial when you feel overwhelmed by your thoughts. The first step is to pay attention to those thoughts or what you are feeling/experiencing, as an impartial spectator. Basically, that means to become the observer of your experience, not just the one experiencing it, if that makes any sense. You don't need to be hooked up to an EEG to experience the benefits, for sure. You can do this practice while taking a shower. In fact, that may be the best time to practice this. Just be sure that your hubby is around. This is not invasive, but because you already fear being home alone while taking a shower, it's probably best to keep that security net.

I have drug resistant epilepsy, so I had to find ways to cope and to atrophy negative thinking pathways that I didn't even realize I had created through feelings of fear, whether I had reason or not to fear. I feel so grateful for the few dedicated and sincerely compassion doctors and scientist that have our best interest at heart. Dr. Todd Murphy is no exception. I have gain many benefits from his research. He is a behavioral neuroscientist and has done a lot of research in this area, especially where TLE is of concern. He had TLE as a child so he is vested and 'gets us'. ;D Here are some brain exercises that may be beneficial for you. (more to follow in next post)

Dr. Todd Murphy
The questions: "why are you anxious " or "what are you anxious about " are meaningless. When you're in the middle of an anxiety attack, everything you experience will seem to be a bit of a threat. There's a very distinct sensation going on in your body. Pay attention to it. Try to feel it, in all its details. Watch how it changes slightly as you breathe. Then, just relax as completely as you can. Go totally limp. Keep your attention on your body so that it isn't pointed at your thoughts. Then, try to imagine that you are floating in space. That's all there is to it. You can add music if you want, because its processed through these same areas, too. Make sure you choose something uplifting.

You see, the part of the brain that's most involved in anxiety is very heavily connected to the part of the brain that mediates our perception of space, and both of these parts are fairly strongly connected to the parts of your brain that allow you to feel and control your body. Doing this meditation, or guided visualization, during an anxiety attack is a way of trying to move the center of electrical activity out of the emotional structure and into another one. The emotional structure (on the right) is where most anxiety attacks come from, and the structure next door (also on the right), seems to have something to do with positive thinking as well as spatial perception, according to some lab results I've had.

How does this work? Well, the brain structure that is activated in moments of extreme fear (the right amygdala) is very closely connected to the part that gets active when we are experiencing positive thoughts ( the right hippocampus). If we let go and relax into fear, it can invoke totally opposite experiences, as excess activity from the 'feeling bad' place spills over into into the 'thinking positive' place. It sounds paradoxical; even the opposite of how we 'feel' it should be, but that's only because we are so accustomed to trying to escape fear.

The Amygdala - an emotional structure.
The left is specialized for positive emotions,
and the right for negative ones.
BWbrain_amy.jpg


The Hippocampus is a cognitive structure.
The one on the right is specialized for positive
expectations (and cognitive style) and the one
on the left for negative ones.
BWbrain_hip.jpg


These structures are the foundation of the limbic system,
here coded with the ones that feel positive when activated.

green = Positive <-------> red= Negative
BW_amy_hip.jpg


If you look at this last image, you will notice how close the 'negative emotions' amygdala is to the 'positive expectations' hippocampus. That can definitely be to our advantage when we know how to 'work the system', so to speak. ;D

Source

Source
 
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http://www.youtube.com/watch?v=<obj...ays" allowfullscreen="true"></embed></object>

Example of neurogenesis (birth of new neurons) - 'pruning' (atrophying) & neural networking:

http://www.youtube.com/watch?v=<obj...ays" allowfullscreen="true"></embed></object>

Another exercise by Dr. Murphy:

It consists of using one's imagination to mentally divide one's body in two - left and right sides. Imagine a vertical line that runs through your nose, your navel, and the length of the torso. Try to 'feel' each side of your body separately. You should notice that each side seems to have a different feel to it. Perhaps one might call it an inner texture. Choose the side that feels best to you.

Imagine that your breath has the power to pump the texture of the side that feels best to the other side. Then do it.

You should find that you sense of your body has changed and that your mood will have improved a bit, too.

The hypothesis I use to explain this is that the imagination selectively activates the Caudate Nucleus, a structure that integrates your emotional state with your body's arousal level. It can be quite pleasant for some people. Source

b-right.jpg


b-left.jpg
 
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