Hello everyone!! My name is Elizabeth and my son Braydon was quickly diagnosed with eiplepsy in Thursday after a single Tonic Clonic seizure one week ago today. Braydon is 10 and otherwise an extremely healthy child. We started Keppra on Thursday night 250mg twice a day and we will increase every week until we are at the correct dosage.
Im concerned that he was diagnosed to quickly and would like a little insight. We have only ever had one tonic clonic seizure however the Neuro Dr (whom by the way WE LOVED) seems to think he may have been having absent seizures and they went unnoticed. I have been told by MANY of his past teachers he seems spacey and they wanted me to put him on ADD meds however we did not believe that was the case and never pursued medicine for it. On Sunday (one week ago today) he suffered a full tonic clonic seizure. He, after the jerking for about 40 seconds, we out cold for about 3 minutes, he urinate on himself, and also was foaming at the mouth. Without a doubt a seizure. We were taken by ambulance to the local ER were we were given a ct scan and released with instrustions to see a pediatric neuro DR within a week.
On thursday we took him to Vanderbilt Childrens hospital were we instructed to do a sleep deprieved EEG then we would see the Dr a few hours later. So we only let him sleep 4 hours the night before and took him in. We saw the Dr and he said without a doubt Braydon was epileptic. His brain was "wanting" to have a seizure the entire time he was hooked up to the machine. He spoke with us for over an hour, and to be honest one of the BEST Doctors I have ever dealt with and made is feel VERY at ease. However Im concerned we have jumped the gun and never should have started meds already. We also have diastat for emergencys. I'm feeling over whelmed and worried we should have gotten a second opinion....any thoughts??
Im concerned that he was diagnosed to quickly and would like a little insight. We have only ever had one tonic clonic seizure however the Neuro Dr (whom by the way WE LOVED) seems to think he may have been having absent seizures and they went unnoticed. I have been told by MANY of his past teachers he seems spacey and they wanted me to put him on ADD meds however we did not believe that was the case and never pursued medicine for it. On Sunday (one week ago today) he suffered a full tonic clonic seizure. He, after the jerking for about 40 seconds, we out cold for about 3 minutes, he urinate on himself, and also was foaming at the mouth. Without a doubt a seizure. We were taken by ambulance to the local ER were we were given a ct scan and released with instrustions to see a pediatric neuro DR within a week.
On thursday we took him to Vanderbilt Childrens hospital were we instructed to do a sleep deprieved EEG then we would see the Dr a few hours later. So we only let him sleep 4 hours the night before and took him in. We saw the Dr and he said without a doubt Braydon was epileptic. His brain was "wanting" to have a seizure the entire time he was hooked up to the machine. He spoke with us for over an hour, and to be honest one of the BEST Doctors I have ever dealt with and made is feel VERY at ease. However Im concerned we have jumped the gun and never should have started meds already. We also have diastat for emergencys. I'm feeling over whelmed and worried we should have gotten a second opinion....any thoughts??