I was diagnosed with Epilepsy at 26 years old. Right front temporal lobe epilepsy to be exact after an EEG showed some abnormal spikes. Of course the doctor didn’t really have much clue what she was doing so she wrote me a script for Keppra, Gabapentin, and of course suspended my drivers license for 90 days.
Of course it’s nice and easy for her to do all this because she sits there in her doctor’s office, collecting her paycheck and moves on with her day. After I let her know that I was having some unpleasant side effects to the Keppra (aggression, rage, etc.) She decided I needed to increase the dosage.
Well after a few weeks of that, I ended up having a complete breakdown, and my parents had to end up making the 400 mile drive down here to get the situation under control, after my now former roommate called them and let them know I was making no sense and could not stop screaming and yelling.
Well arguments ensued, fists went through drywall, I threw my laptop and we decided that Keppra probably wasn’t the medication for me. I ended up seeing another doctor in the same medical group (who ended up being my doctor’s clinical supervisor!). And gave me some Lamictol which made me violently ill. She never even bothered to review my EEG, notes or anything else.
Meanwhile, thanks to the epilepsy society, I found an out of network doctor who has me on the right track, hopefully. At least I have my driver’s license back and have a reliable vehicle to drive to my part time job.
In the mean time, I have lost most of my friends, including my best friend of 15 years, because I have become so abrasive, my dog is really sick, and I obviously haven’t been feeling great myself-at least the new meds have me loosing weight. I am trying not to feel sorry for myself but I wanted to stop in and tell part of my story. I have read through other people’s post and realize they have it much worse.
I feel like I have been going at this alone for almost a year now and I am just looking for a place to share part of my story. Thanks for listening.
Of course it’s nice and easy for her to do all this because she sits there in her doctor’s office, collecting her paycheck and moves on with her day. After I let her know that I was having some unpleasant side effects to the Keppra (aggression, rage, etc.) She decided I needed to increase the dosage.
Well after a few weeks of that, I ended up having a complete breakdown, and my parents had to end up making the 400 mile drive down here to get the situation under control, after my now former roommate called them and let them know I was making no sense and could not stop screaming and yelling.
Well arguments ensued, fists went through drywall, I threw my laptop and we decided that Keppra probably wasn’t the medication for me. I ended up seeing another doctor in the same medical group (who ended up being my doctor’s clinical supervisor!). And gave me some Lamictol which made me violently ill. She never even bothered to review my EEG, notes or anything else.
Meanwhile, thanks to the epilepsy society, I found an out of network doctor who has me on the right track, hopefully. At least I have my driver’s license back and have a reliable vehicle to drive to my part time job.
In the mean time, I have lost most of my friends, including my best friend of 15 years, because I have become so abrasive, my dog is really sick, and I obviously haven’t been feeling great myself-at least the new meds have me loosing weight. I am trying not to feel sorry for myself but I wanted to stop in and tell part of my story. I have read through other people’s post and realize they have it much worse.
I feel like I have been going at this alone for almost a year now and I am just looking for a place to share part of my story. Thanks for listening.