New to the forum with a question

[Chinda3433]

Hello, I am new to forums so please bear with me. Last year I had emergency brain surgery to remove 2 blood clots and stop some bleeding. Doctors have not been able to determine why it happened and say that is very rare for someone my age and who is in otherwise good health. Scar tissue in my brain is now causing grand mal seizures, which we are hoping will be controlled by medication, but I guess won't really know until some time has passed.

Anyway, I am wondering how others feel before they have a seizure. Like do you know it's coming? In my case I have only had one grand mal seizure (happened a couple weeks before Christmas) and immediately prior my left side went numb and then started to twitch. I ask because I have two children whom I'm home alone with while their father is at work and would like to be able to coach them through calling their father or an ambulance if necessary.

Any feedback would be greatly appreciated. Thank you all for taking time to read.

 

[Fedup]

Chinda3433

At the beginning no I could not tell when a seizure was going to happen but over the years there are certain things that happen that tell me, let me explain this morning I got up I did not feel well, its not the feeling you get with a cold or flu or food poisoning its a certain way the feeling happens, then I get warm, very warm, it was below 0 this morning and I could not stand the heat. So now I have a good idea when something is going to happen but a lot of the time it just happens for me.

 

[Nakamova]

Hi Chinda3433, welcome!

Some people get warnings (called partial seizures) before they have a grand mal, some don't. I'm in the latter category -- no warning whatsoever.

For those who get them, the warning sensations can take a variety of forms, but a common one is as Fedup describes -- a certain sense of unease, nausea, anxiety, flushing or shivering. Some people experience a rapid heartbeat. There can be tingling and twitching and numbness as you experienced as well. I hope you never have another seizure, but if you do, make a note of how you feel in the hours and minutes beforehand.

Best,
Nakamova

 

[jyearta]

First Let me welcome you here,

I'm 60, my seizures have changed over the years.
I wasn't on meds. for 18 years, that is when I my one and only grand Mal,

In the last 3 years My seizures are controlled for the most part.

I have déjà uv- where everything around me seems as if it has happened before. I know to get to a safe place then the Seizure comes on. I stop whatever I doing will stare, smack my lips, swallow hard many times, have lobster claw like movement in my hands.

 

[Maisy]

Hey welcome,
Im 23, And being diagnosed, but over the past couple of months ive worked it out, I get very warm too, and a wave of sickness, and sometimes i can feel it in my head like fuzziness, but this is just me, everyones is different as above some just dont know.