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- Thread starter Belle
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BuckeyeFan
Grandpa
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- 1,960
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:cheers:
Welome to our family here at CWE. Like Eric said, this is a great place for parents, not just those of us who have E. You need support and answers just as much we do.
:cheers:
Welome to our family here at CWE. Like Eric said, this is a great place for parents, not just those of us who have E. You need support and answers just as much we do.
:cheers:
Hi, hello and
how do you do, Belle? It's very nice to meet you.
I'm sorry to hear that your son's seizures are getting worse--have you tried keeping a seizure diary for him to see what his triggers may be? Perhaps doing that will help you.
Even things like food--yes, food--can be triggers for the seizures. There's plenty of people here that can testify to that. Lights, sounds (there are some people triggered by a specific song or sound) and hormones are all culprits.
I have a great list of things that you can put into a seizure diary to help you eliminate things--and then showing it to your doctor may help determine how to best deal with things.
Feel free to poke around in all the nooks and crannies here. We have plenty of them. Mr B has built us an AWESOME home here--the dinner party is fun, and plenty of friends to make and have. Lots of information can be found in the Library and the Kitchen, so kick back and relax, I'm sure you're going to like it here.
Now, I burned the coffee again, otherwise I'd offer you some. Maybe Buckeye made some..........
Take care!
Meetz
:rock:
how do you do, Belle? It's very nice to meet you.
I'm sorry to hear that your son's seizures are getting worse--have you tried keeping a seizure diary for him to see what his triggers may be? Perhaps doing that will help you.
Even things like food--yes, food--can be triggers for the seizures. There's plenty of people here that can testify to that. Lights, sounds (there are some people triggered by a specific song or sound) and hormones are all culprits.
I have a great list of things that you can put into a seizure diary to help you eliminate things--and then showing it to your doctor may help determine how to best deal with things.
Feel free to poke around in all the nooks and crannies here. We have plenty of them. Mr B has built us an AWESOME home here--the dinner party is fun, and plenty of friends to make and have. Lots of information can be found in the Library and the Kitchen, so kick back and relax, I'm sure you're going to like it here.
Now, I burned the coffee again, otherwise I'd offer you some. Maybe Buckeye made some..........
Take care!
Meetz
:rock:
- Messages
- 17,355
- Reaction score
- 756
- Points
- 263
Hi Belle, welcome!
There's lots of support here at CWE, as well as empathy and advice. You might want to ask your son's neuro about a med change to help control his seizures, and/or look into alternatives like neurofeedback.
Best,
Nakamova
There's lots of support here at CWE, as well as empathy and advice. You might want to ask your son's neuro about a med change to help control his seizures, and/or look into alternatives like neurofeedback.
Best,
Nakamova
