Hi there!
My son was diagnosed with Complex Partial Seizures - Epilepsy this week. He has been having seizures for the last month. He has had an abnormal EEG, and has been started on Keppra. His MRI was negative, thank God.
We have been *baffled* with the diagnosis of Epilepsy. The most common statement I've heard in this past week (even by my pediatrician-God help me) has been, "that certainly doesn't sound like seizures!" I am forced to recon with this and learn as much as possible! I am having a hard time and I KNOW my son is. He had 3 seizures yesterday and was actually trying to hide them from to keep me from worrying. He is refusing to talk about this with other people or family members and I know he has to deal with this in his own time. It just breaks my heart so see him with this. It's hard enough being a teenage boy at 14 in this world, and now this?
I know I shouldn't, but I am grieving for his loss of "normalcy" and the uncertainly of what the future holds with all this, it's just so troubling.
Thanks for reading.
Angie:crying:
My son was diagnosed with Complex Partial Seizures - Epilepsy this week. He has been having seizures for the last month. He has had an abnormal EEG, and has been started on Keppra. His MRI was negative, thank God.
We have been *baffled* with the diagnosis of Epilepsy. The most common statement I've heard in this past week (even by my pediatrician-God help me) has been, "that certainly doesn't sound like seizures!" I am forced to recon with this and learn as much as possible! I am having a hard time and I KNOW my son is. He had 3 seizures yesterday and was actually trying to hide them from to keep me from worrying. He is refusing to talk about this with other people or family members and I know he has to deal with this in his own time. It just breaks my heart so see him with this. It's hard enough being a teenage boy at 14 in this world, and now this?
I know I shouldn't, but I am grieving for his loss of "normalcy" and the uncertainly of what the future holds with all this, it's just so troubling.
Thanks for reading.
Angie:crying: