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i just turned 37...for past few years I would have random episodes of black outs, during these blackouts, i would converse , have intimacy with my spouse, even snack, without remembering anything the next day.. i would forget things in my night time routine such as not washing my makeup off, forgetting my retainer then wakeup with a odd feeling like what happened...another time i just got home from shopping with my two kids, put groceries away, wanted to watch a movie with my kids, sat down, eyes unfocused, got really drowsey and fell asleep sitting up, my kids couldnt wake me up, not even the phone ringing woke me up. 3 hours later i woke up scared crazy not knowing what happened or where my kids were, they apparently tucked themselves in after their dad called home from work... another time apparently i fell into our garden soaker tub while trying to trim my toenails and I do not recall even doing this...most of my events occurred in the evening, with my one exception that occurred in February 2013 this year in the morning as I was getting myself ready to take myself to physical therapy for my back pain... my eyes started to go out of focus, i felt unbalanced dizzy, really tired..my husband woke up noticed i didnt look right and frove me to my appt, I WAS GOING TO DRIVE MYSELF!! i domt remember anything after... i called my therapist after and she told me my eyes looked droopy, i was lathargic, i was unbalanced my speech was slurred, i looked drunk. she had me text and then call my husband, both i do not even recall doing, nor do i recall even him picking me back up or getting back home. or falling asleep on the sofa for over 3 hours!... I had a MRI in jan, normal... i had a EEG in april that showed spikes in my right temporal lobe my neurologist says complex partial seizures... i just had another MRI last 5/25/13 again normal.. and tomorrow i go in for a 24hr EEG... im currently on topamax slowly being dosed up to 300mg a day. im fatigued, i sleep all the time, no energy , headaches alot, i feel as though i have symptoms still, they have me journaling, seems most active the weeks leading up to my periods. most at night, they are pupil dialtions large to small to large to small, making me dizzy, left ear hissing at same time as eyes , i feel head pressure , i just dont feel like ME! frustrated beyond words.. youd think id be thrilled to death there isnt any lesions or MTS on my brain MRI or tumor and i am, but at least if there was id have an answer as to why i was having all this happening out of the blue.... i can use all the help support information anything from anyone going through anything similar!!
 
Welcome to CWE, tons of support and helpful advice is on the forums. You found the right place!

Your experiences don't sound to different from many peoples. It is good they found something on the EEG so they having something to go from. As for feeling really "not yourself" I can relate to that. Sometimes the meds really do take a lot out of a person, physically and mentally.

You're doing all the right stuff journaling and paying attention to the seizures. That might help the Dr. figure out a possible cause. Sometime the cause of seizures remains a mystery. The brain is so complex and strange. Sometimes trauma to the brain can surface up years later as seizures. I wish I had a definite answer but so many of us are asking the same questions.

Hope you start feeling better.
 
Welcome! I love your screen name :)
You will have lots of people here to help you out whenever you need it. I agree with Muay, sounds like you are doing the right things. Also, it may be a good idea to have someone with you while your husband is at work until your medication begins to take effect. Since you are unaware of what you are doing for those periods of time, you want to make sure that you don't hurt yourself or someone else. Please let us know how you are doing. (((HUGS)))
 
Hi Moosaysthcow, welcome to CWE!

The journaling may help you find triggers. If you tend to have symptoms at the same time each month, that suggests you may have catamenial epilepsy (seizures related to spikes in estrogen). You can read more about that here: http://en.wikipedia.org/wiki/Catamenial_epilepsy and here: http://www.coping-with-epilepsy.com/forums/f20/women-only-seizures-increase-during-time-month-20717/

I hope the Topamax helps control your seizures. Its side effects can include memory problems, fatigue, and general mental and physical slowing. If you find that the side effects outweigh the benefits, let your neuro know -- there are many other meds out there to try.

Best,
Nakamova
 
my MRI was normal on 5/25 and today im hooked up having my 24hr EEG... so we shall see what happens i guess.. i havent had many symptoms lately this week was my week to up my topamax another 25mg again making my daily dose now 250mg a day now...i get pressure headaches nightly.. ugh.. and my baseline eeg today was hell! by the end of the hyperventilation and lights my lower lip was quivering.. i hated it...
 
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