PlatypusPerry
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Newbie here with postpartum medication problems.
I don't really know where to begin here since to get pregnant I change my meds to "safe meds" from my "normal" meds. So I've been on the "safe" meds for a couple years now getting pregnant/being pregnant/etc LOL.
I've done this once before too (with it's own different set of stuff...other story entirely).
I'll try to sum it up fast.
Diagnosed with JME in 1995 Age 15 1/2 - I would tend to have seizures when I menstruate. Put on birth control to only have periods every 3 mnths or so.
Eventually Depakote/Topamax worked out to be the magic combo of drugs.
When I went to get pregnant my doc switched me to Keppra only. That worked well but I did have quite a few seizures. At the very end we added Depakote. (First pregnancy)
After giving birth switched meds back to Depakote/Topamax.
To get pregnant then switched back to just Keppra at some point. Keppra wasn't working - added Lamictal.
Fast forward to today and I'm switching back from the Keppra and Lamictal to the Depakote and Topamax.
I'm completely off the Lamictal right now.
Right now I'm on:
AM Keppra500mg,Top300mg, DepakoteER 500mg
PM Keppra500mg,Top300mg, DepakoteER 10000 mg
I've always been on plain Depakote before and told my epileptologist that and he's been seeing me for years.
Right now I'm having seizures about every 10 days. The last one was spread 12 days.
For some reason they're different. I've never lost control of my bowel before and with these ones I am which is very embarrassing. I don't quite know what to do about it.
Any medication suggestions?
My last seizure was the other day, I called my doctor the day it happened and left a message and haven't heard back. At this point I think I may need to start looking for a new doctor. Anyone have any suggestions?
I don't really know where to begin here since to get pregnant I change my meds to "safe meds" from my "normal" meds. So I've been on the "safe" meds for a couple years now getting pregnant/being pregnant/etc LOL.
I've done this once before too (with it's own different set of stuff...other story entirely).
I'll try to sum it up fast.
Diagnosed with JME in 1995 Age 15 1/2 - I would tend to have seizures when I menstruate. Put on birth control to only have periods every 3 mnths or so.
Eventually Depakote/Topamax worked out to be the magic combo of drugs.
When I went to get pregnant my doc switched me to Keppra only. That worked well but I did have quite a few seizures. At the very end we added Depakote. (First pregnancy)
After giving birth switched meds back to Depakote/Topamax.
To get pregnant then switched back to just Keppra at some point. Keppra wasn't working - added Lamictal.
Fast forward to today and I'm switching back from the Keppra and Lamictal to the Depakote and Topamax.
I'm completely off the Lamictal right now.
Right now I'm on:
AM Keppra500mg,Top300mg, DepakoteER 500mg
PM Keppra500mg,Top300mg, DepakoteER 10000 mg
I've always been on plain Depakote before and told my epileptologist that and he's been seeing me for years.
Right now I'm having seizures about every 10 days. The last one was spread 12 days.
For some reason they're different. I've never lost control of my bowel before and with these ones I am which is very embarrassing. I don't quite know what to do about it.
Any medication suggestions?
My last seizure was the other day, I called my doctor the day it happened and left a message and haven't heard back. At this point I think I may need to start looking for a new doctor. Anyone have any suggestions?