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nicola

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Hi everybody:hugs:

Im Nicola and im from the uk...:O) I live in Stowmarket, Suffolk. Even tho i live here im not English im Welsh...:clap: :O)

I have a son who is 7 and a daughter whos 6..:O) My hubby is x Army and we were posted here a while back and we liked the area so we decided to settle here.

I was Diagnosed with Epilepsy when i was 40 my son was 8 mths old and we had my parents for xmas had a lovely 40th birthday and then that night...light a bot of lighting my husband woke up an found having a grand mal/ tonic clonic seizure...i remember coming round and saw a paramedic sitting next to me and an oxygen mask on face....!!! I was terrified!!

I was diagnosed as having Nocturnal Grand Mal Siezures. I take 300g everyday of lamotrogine. Atho the meds keep the TC at bay i still get breakthrough seizures. I had one 2 nights ago and i did feel and still do feel really emotional because i hadnt had one for a while.

Im so glad ive joined this forum because its lonely being and epileptic if you dont know anyone that suffers too. Its reasurring that im not the only one who gets breakthroughs!! I know what my triggers are..mainly stress. we have been through a lot as my mum past away a year this mth and 6 weeks ago our springer spaniel had to be put to sleep...my best friend...:O(

Thanks for being here!!!!

Nicola

xxxxxxxxxxxxx
 
Welcome, I am from Maryland near Washington D.C. And found this forum about a month ago it is a great place. Like you I primarily have nocturnal tonic clonic seizures. I have had them off and on since I was about nine. I understand they can be scary especially since you started having them. I am sorry for your loss I agree stress is a big trigger as well as not getting enough sleep. Welcome and take care.
 
Welcome to CWE!
Lots of good people are here to offer opinions, who ask for your opinion, and who give a shoulder to lean on when you need it.
I've have nocturnal seizures as well, although fortunately not tonic-clonic.
Looking forward to seeing you around the forums.
 
Thanks guys....:O)


I hope you are well....:O) Its great to have people to share with and from all parts of world too...:O) One of my best friends lives in Utah went over to see her about 8 years ago....i loved it...wish i could do all over again but ill have to wait till the kids are a bit older...:O)
 
Hi Nicola and welcome to CWE.

Your seizures and mine are the same kind, nocturnal and full TC.
I've had them for 31 years. Sucks, doesn't it? :)
If you're still having breakthroughs you can talk to your neuro about other medications that might work for you and/or nutritional strategies that might help boost your med's effectiveness.

Most of all I wanted to offer my condolences on the loss of your dog. As you can tell from my pic, I am a dog lover too.


If you just need a place to vent this is it. If there is anything we can help with, please ask.
 
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Hi nicola!

I usually only have partial seizures but I will have at least one tonic clonic a year.

With the meds that I'm on I average about 7 seizures a month. I hate it though when I'll go a month and have only 3 seizure, I think I'm doing great, but then I'm back to normal the next month.

Stress is a HUGE seizure trigger for me. When my grandmother passed away I had over 20 seizures that month. The same happened when I had to put one of my cats down. I try not to let things bother me too much but that's easier said than done.

I've gotten a ton of help from CWE. It's great to find people that understand what you are going through and when you try to explain something they almost always understand what you mean. It's not like trying to describe how you are feeling to someone without epilepsy because it's almost impossible.

It's great to meet you!
 
Hi nicola, :hugs:

CWE was made by Bernard out of love for his wife Stacy. That love permeates throughout the whole forum. Stacy has epilepsy. Bernard keeps a diary of what is going on so we know to.

Welcome to the best epilepsy forum that you will ever find. seagull is from the UK. There are several people from the UK.

:cheers:
 
It is great being able to be in place where everybody understands what you are talking about. I couldn't agree more about stress there is a direct correlation between stress and seizures with me as well.
 
Hiya...:O)

I have to say stress is prob the main trigger for me. I dont drink anymore and to be honest i dont miss it either...:O)...I have a thought, do you think that Epilepsy is a way of re booting our brains..??? I have often wondered. I horrible way of doing it i know...what do you guys think??????........:O)
 
nicola, I don't think so, epilepsy is an illness. It is not a way to reboot our brains.

the way to reboot our brains is by challenging our brains. Like reading, studying playing crossword puzzles, etc.
 
Ruth said:
nicola, I don't think so, epilepsy is an illness. It is not a way to reboot our brains.

the way to reboot our brains is by challenging our brains. Like reading, studying playing crossword puzzles, etc.
Click to expand...
Epilepsy may be an illness but at least if I was just like my husband he was able to have
a mass cut out causing his seizures, and with him being diabetic he's able to take a pill to control it and his high blood pressure.

I am not that lucky and never had just one type of seizure mine change all the time,
I had a simple partial seizure last evening before I went to sleep. I'm tired of seizing and I'm angry I see I don't have that right.
 
I agree with Ruth epilepsy is a illness and we also have to reboot and keep our brains and imaginations active by being active and engaged.
 
Hiya..:O)

regarding our brains re booting i asked my hubby the same thing and his reply was no...he said seeing the way i am while having and just after...its definately not a re booting system....:O)
 
:agree: I feel good this morning. I am :hungry:

I think I will have breakfast :)
 
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