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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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rewired

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I just found this place tonight. I have had epilepsy since I was diagnosed at age 9 months, am 46 now. Years not months. LOL
Give details??? I was dx with complex partial, secondary generlized seizures. After having Viral Menigitis at 6 months, Viral Ensphilitis at 7months and one of the other or both at 8 months. I have been on numerous meds, study patients for several of them. I was the 17th person to have the VNS done at Tempel U. in Philly in 1990. I had the right hippocampus removed in 1999.
At the height of my med regime, I was taking: Dilantin, Phenobarb, Tegratol, Depakote, Valuim and Ativan. Now I only take Tegratol and Keppra. At the height of my seizures in the late 90's, I was having 600-1000 a yr. they would cluster to 4-5 every 2-3 days. Now I have 6-8 Grand Mal seizures in my sleep.
My family is very close knit, due to my dad had being listed as Missing In Action from Vietnam and I think my epil. I know it is weird, but looking back and growing up and seeing how much my older brothers were there to protect me from others that didn't understand or didn't want to understand. I have been discrimanted due to my seizures. My mother was told when I was 2yrs old to place me in a state school, much like a local one here in Augusta. Google Gracewood state school and hospital. She was told that at best I would pump gas for a living and would never be able to take care of my self.
It took me 6 yrs to get my BS in psych but since then I have been working in the Crisis Mental Health Field. It's a great place to work if you like 10 things going in 12 different ways at once. LOL If not, I hear that bookkeeping is a nice job. JK LOL
I'm not to sure what else you want to know. Feel free to ask, I'm not a shy person. LOL

Chris
 
Welcome Chris! :)

I'm sure you'll find the site consists of a great group of people who are here for each other.
 
Howdy Chris, welcome to the forum!

It sounds like you've experienced a bit of everything that epilepsy can throw at a person. And survived with your humor intact. I don't know if you've ever explored using diet and/or neurofeedback to help control or reduce your seizures. You can search for info about those options on this site, and also hear from people who have has some success pursuing them. Plenty of other information here too, as well as places to vent and chat and share.

Best,
Nakamova
 
Welcome Chris!

Everyone here is great. Very supportive and understanding. Tons of information, great people.

Glad to have you here.

Chris
 
Welcome, this is a great place for information, support or just to vent to others who understand.
jenn
 
WELCOME hope you find your way around and if not just ask the questions.
 
Hi, hello

and how do you do? It's very nice to "meet" you! :) Sorry for the cheesy greeting, I just couldn't help myself. LOL

I'm sure you're going to like CWE quite a bit......Mr B, our host, has built us an AWESOME home here. Feel free to check things out.....the Library and Kitchen are great for all sorts of information, and the Padded Room is great for those days that you REALLY need to vent.

So kick up your feet and make yourself at home. We'll be here for ya.

Take care.

Meetz
:rock:
 
Welcome Chris
I hope you find some great support here to make your days a little brighter. I know I have.
 
Welcome Chris! We all need to see another defiant person beat the system. It empowers us all. Like you, I was told I'd never make it in college prep. I have several college degrees...probably defiance was part of my motivation. Wanted to show they were wrong.

I've lived with dogs all my life. They love you with or without epilepsy. You're fortunate to have a tight knit emotionally supportive and protective family. Not sure mine is tight knit, but they were supportive.

Stress is my factor for seizures. I try to listen to happy music and hang out with my dog.
 
I love dogs too. I had a Golden that was a natural seizure dog. After my surgery, my seizures would only happen while I was alseep. She would go wake up my wife then go to my side of the bed until I was with it enough to say her name. She died on Memoral day this year, at the age of 11. Bassets have always been in our family and we have a cou70ple of english bulldogs now.
What kind of dogs do you have
 
Currently, I have a border collie mix who came from the pound. She's the best investment I made 7 years ago. We do a long stress busting walk every night 'cause she's a high energy rowdy dog. She is extremely sensitive to anything out of the ordinary.
 
Welcome Chris, I am glad you found this site, it has been a life saver for me considering I was diagnosed 4 months ago at the age of 37. I know nothing about epliepsy and the folks on here have been very helpful.

I currently have a 12 year old Golden Retriever and he seems to pick up on my unusal brain activities. He gets a little excited right before I am about to have an episode. Too bad, most of mine occur at work where he isn't around to warn me.

I am sorry to hear about your loss of "Man's best friend." I am waiting for the day when Bud doesn't come home or we find him. Mommy will be crying for weeks when that happens.

Have a great week!
Connie
 
Hi, Chris,

Welcome!~

Your life history shows how strong you are. You've done amazing things, and now are helping a lot of people through possibly the roughest time in their lives. Thank you so much for that.

You'll love the forum. (I do!) The people here are great, with tons of knowlege. They are also very supportive.

I'm glad you are here. :)
 
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