Hello Everyone,
this may be a long post pre warning!
My son was diagnoised with PTU last year. Have check ups at hospital ect had EEG to confirm which was normal.
Now around christmas time he become very unwell and started having a different type of 'thing' they started just every now and then where he just would go blank and not respond,and some where his eyes would flicker.
we had a check up at the hospital start of Jan and i told them about it and they are sorting another EEG (they where only hapening 1/2 every few days.Now since seeing the consultant they have got alot worse having quite a few a day, he also does this thing where he will tip is head back and then fall, eyes sometimes are going all over the place.
He also has started waking screaming in the night or after his nap and taking me a good 30 mins to calm him down. I am just very worried!! They think it is epilepsy, but not to sure what to do, i don't no whether to call the hosiptal see what they say as im worried about waiting a few months for an EEG. I have a video of some of the things and now keeping a diary too. any advice or comments i would really like THANK YOU! xx
this may be a long post pre warning!
My son was diagnoised with PTU last year. Have check ups at hospital ect had EEG to confirm which was normal.
Now around christmas time he become very unwell and started having a different type of 'thing' they started just every now and then where he just would go blank and not respond,and some where his eyes would flicker.
we had a check up at the hospital start of Jan and i told them about it and they are sorting another EEG (they where only hapening 1/2 every few days.Now since seeing the consultant they have got alot worse having quite a few a day, he also does this thing where he will tip is head back and then fall, eyes sometimes are going all over the place.
He also has started waking screaming in the night or after his nap and taking me a good 30 mins to calm him down. I am just very worried!! They think it is epilepsy, but not to sure what to do, i don't no whether to call the hosiptal see what they say as im worried about waiting a few months for an EEG. I have a video of some of the things and now keeping a diary too. any advice or comments i would really like THANK YOU! xx