night time TC's but drs won't do anything....

[jayde-101]

I've been having such a bad few weeks... Im still off work have been for 7weeks now cause of seizures ....they always happen at night time in the early hours between 2am and 6am ...i keep going to the doctors and they keep telling me they can't do anything like start meds until i see the neurologist but my appointment for them is not till June 25th i just don't know what to do anymore ...

Im only getting about 2-3hours sleep cause of them

Dunno where to turn anymore


jade xxx

 

[huskymom]

I feel for you! I can't believe that it is going to take that long Is there anyway that you can call the office and tell them what is happening? Get put on the call list for any canceled appointments? You may just have to do the tried and true method of just going to the dr's office and hanging out in the waiting room. It can be a pain, but it usually works. If all else fails, go to the emergency room. Good luck!

 

[Nakamova]

Yes, it shouldn't be this way, but you sometimes have to be extraordinarily aggressive to get the help you deserve. Keep calling, ask if there aren't any other neurologists who could see you earlier, and yes, camp out in the waiting room. Any chance someone could film your morning seizure?

 

[LJ-Bain]

Don't give up the fight! I have done my fair share of hospital hopping too just to be seen by fresh eyes and perhaps someone who will see my situation differently!
I wish I could send you some quality hours of sleep your way. I bet that would help alot. You must be beyond frusterated.