Non-Epileptic Seizures....confused

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c_comardelle

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So I just got out of the hospital after staying in the epilepsy monitoring unit. I was told that the seizures that I had were non epileptic. I am so confused and don't know where to turn. Has anyone else had this done and was told the same thing?
 
Non-epileptic seizures is the often the default diagnosis when no confirming evidence for epilepsy shows up on an EEG. Unfortunately, the EEG isn't a perfect test -- something many neurologists seem to be in denial about -- so folks can be inaccurately labelled with the PNES diagnosis.

At the very least, the hospital should have referred you to a psychiatrist for help in treating your non-epileptic seizures (or in ruling out that diagnosis). You can read more about this topic at the links below:
http://www.coping-with-epilepsy.com/forums/f23/anyone-dxed-non-epileptic-seizures-16549/
http://www.coping-with-epilepsy.com/forums/f22/nes-non-epileptic-seizures-9753/
http://www.coping-with-epilepsy.com/forums/f20/pseudoseizures-non-epileptic-attack-disorder-15941/
http://www.coping-with-epilepsy.com/forums/f23/psychogenic-seizures-11893/
http://www.coping-with-epilepsy.com/forums/f20/non-epileptic-seizures-help-16463/
http://www.coping-with-epilepsy.com...pnes-psychogenic-nonepileptic-seizures-16317/
http://www.coping-with-epilepsy.com...ex-partial-nead-nes-pnes-including-ptsd-1680/
http://www.coping-with-epilepsy.com/forums/f20/pseudo-seizures-2-years-getting-worse-6287/
http://www.coping-with-epilepsy.com/forums/f23/pseudoseizures-mean-er-doctor-3146/
 
Nakamova, if you could invent a new EEG... you'd be rich :)

C-comardelle, non E seizures is confusing. I've been trying to figure it out as well. Check out the links nakamova gave you. It will help clear things up.
 
c comardelle,.. I had in hospital monitoring in South Australia and my seizures, I believe are 'non epileptic' or Pseudoseizures or even psychogenic they are not normal. in approx 1 month time I should get to see a psychiatrist and he is going to work hand in hand with my neurologist so I can have a new mix of drugs including way less epilepsy drugs and a anxiety drug to help me afterall anxiety causes my seizures and the seizure comes out when i finally relax again each time as I live a very tense/stressed life.
 
Nakamova, if you could invent a new EEG... you'd be rich
Click to expand...

I wish! The technology is steadily improving, let's hope the docs improve as well...
 
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