Not Sure If I have Epileptic or Non-Epileptic Seizures

[Hereforq]

Hello, Community

Currently, I am on Keppra XR (Levetiracetam Extended-Release Tablets) 2,500mg is my current dosage I've had 2 MRIs(Normal) 1 Cat scan(Normal) 3 EEGs(Normal) Had a sleep study was done (Normal) even done blood test all my levels are normal. My first episode started when I slept walked this was in 2010 Christmas eve then I slept walked again in 2015 on Christmas Eve also.

Then I had a seizure they think this is very complicated because I remember being in the room on facetime and I said in my head it's so bright in here I might have a seizure I never had them before then I remember hearing the person I was on the Facetime asking whats wrong and my family screaming telling me not to die etc I heard everything but couldnt move but see black all of this was in 2016 I even heard the parametric even heard them asking questions they admited me to the hopital was pumping me with Keppra and put me on dilantin just in case. Stopped the dilantin and just put me on Keppra I had no seizures 2 weeks in the hospital.

They had me on 250mg of Keppra for a month no seizures they only gave me a month supply After that, I started having 3 seizures a month in 2016 and they have been increasing my dosage every since they tried to start me on 3,000mg of Keppra I declined because I was basically a zombie I just slept didnt even move didnt talk woke up went back to sleep.

In 2016 I had 8 seizure In total.

This year I was seizure free until May 21st I was Seizure free June had (1)July, (2)August Seizure free September (1) October so far this year I've had 4 seizures.

Hopefully, I can make these two months of the year

I have extreme anxiety on this medication I wake up extremely confused heart palpitations every since this dosage of 2,500mg and switch from regular Keppra (Levetiracetam) to Keppra XR (Levetiracetam Extended-Release Tablets). The doctors really haven't been any help they just try to put me on more medications and stretch out my appointment days to month my next appointment is not until next year. I just need help and stressed out my last seizure was 12 days ago in October.

My seizure seems to be happening when I'm extremely stressed out or talking about this thing that happened to me in my past or sleep. They videotaped my two seizure and they don't look like normal seizure im grunting snoring and its like I'm fighting a dream my eyes are open and going everywhere like im in REM sleep I bit my tongue which kinda gives a clue they seizures. Im just clueless and Exhausted Depressed

 

[Porkette]

Hi Hereforg,

Welcome to CWE! It's great to see that you have had a lot of testing done, I've had the same testing done and my Dr. couldn't find all the detail of what was going on until he sent me to an Epileptologist which is a Dr. that specializes in epilepsy, you may want to ask your family Dr. to refer you to see one. I've had epilepsy for 45 yrs. and I got the most help from an Epileptologist.

My advice to you is to have a veeg (video e.e.g.) done this way the Dr. can see the seizure on video tape. Also they may want to do a wada test along with a spect and pet scan to show much more detail.

Stress and lack of sleep are 2 of the main things that can trigger seizures for some people. If you like music try listening to some music when you are under stress it helps calm the nerves down.

I was on Keppra for a little while but my seizures increased because the drug wasn't working for me and this could be what's happening with you. You can have a DNA test done by your Dr. and this will show the amount of enzymes in a persons liver along with their body chemistry. The Dr. can see that and then match that up to the best seizure meds for a person with the least side effects.

Other things that can sometimes trigger seizures for some people is to many carbs and starch foods along with using nutra sweet. One big thing that bothers me is when there's a low pressure in the weather, that in turn effects my hormones and in turn triggers seizures for me.
I wish you the best of luck everyone here has been a great friend and great help to me.
May God Bless You!

Sue

 

[Hereforq]

Hi Hereforg,

Welcome to CWE! It's great to see that you have had a lot of testing done, I've had the same testing done and my Dr. couldn't find all the detail of what was going on until he sent me to an Epileptologist which is a Dr. that specializes in epilepsy, you may want to ask your family Dr. to refer you to see one. I've had epilepsy for 45 yrs. and I got the most help from an Epileptologist.

My advice to you is to have a veeg (video e.e.g.) done this way the Dr. can see the seizure on video tape. Also they may want to do a wada test along with a spect and pet scan to show much more detail.

Stress and lack of sleep are 2 of the main things that can trigger seizures for some people. If you like music try listening to some music when you are under stress it helps calm the nerves down.

I was on Keppra for a little while but my seizures increased because the drug wasn't working for me and this could be what's happening with you. You can have a DNA test done by your Dr. and this will show the amount of enzymes in a persons liver along with their body chemistry. The Dr. can see that and then match that up to the best seizure meds for a person with the least side effects.

Other things that can sometimes trigger seizures for some people is to many carbs and starch foods along with using nutra sweet. One big thing that bothers me is when there's a low pressure in the weather, that in turn effects my hormones and in turn triggers seizures for me.
I wish you the best of luck everyone here has been a great friend and great help to me.
May God Bless You!

Sue

Thank you so much for the reply helped my day getting a support reply on this I will look into all of these things my father had a history of liver problems so I might need to look into that never heard of the spect and pet scan I stay in a small town so its not much here might have to move but I have medicaid so it might have to be a major city but thank you i will be looking into everything youve said

 

[Nakamova]

Hi Hereforq, welcome to CWE!

They videotaped my two seizure and they don't look like normal seizure im grunting snoring and its like I'm fighting a dream my eyes are open and going everywhere like im in REM sleep I bit my tongue which kinda gives a clue they seizures.

These sound like what are called Complex Partial seizures.

I agree with Sue -- it would be great if you could see an epilepsy specialist. Ideally someone who would offer you other meds to try besides the Keppra or Dilantin. There are MANY anti-seizure meds and sometimes it can take a few tries to find the best match.

 

[seagull]

I unable help you but you gave me something to ponder.Dr gave me keppra I fell it wrong thing to me you just confirmed it