For some reason my seizures are getting worse and I don't know what to do or where to turn. My husband is getting very little of sleep at night because every time i move or make a sound it wakes him. I am almost at the point that i just want to give up. Please help
not sure what do do next i need help
- Thread starter kovy1991
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Jeff
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Has your neurologist made any changes to your epilepsy medication? It's happened in the past for me that my seizures have worsened after my neuro has lowered the dose in a bid to reduce side-effects, and such, but it would only worsen the seizures. Therefore, the neurologist perhaps may just restore me back to my former set of meds... I'm sorry to hear about your distress.
kovy1991,
Could it be your husband is so nervous or worried about seizures that he is fearful that you are having seizures? Or he confirms you are having many seizures? Which if confirmed would need to be discussed with your specialist.
And if not, your hubby may need to learn not to always expect a seizure -every time you move (could be stress and worry for u and he wakens when u move, I know that feeling, my Son now 27 has nocturnal T/C).
Warm welcome to CWE
Could it be your husband is so nervous or worried about seizures that he is fearful that you are having seizures? Or he confirms you are having many seizures? Which if confirmed would need to be discussed with your specialist.
And if not, your hubby may need to learn not to always expect a seizure -every time you move (could be stress and worry for u and he wakens when u move, I know that feeling, my Son now 27 has nocturnal T/C).
Warm welcome to CWE
Autumn Breeze
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Welcome! My husband also worries every time I move, wake up, or get hot while I'm sleeping. And he already has sleep issues.
Definitely talk with your doctor, and if you have to, take a night or two a week and sleep apart just so you both might get a good night of rest?
It's no fun for them I'm sure. Especially if we have seizure activity in our sleep!
Definitely talk with your doctor, and if you have to, take a night or two a week and sleep apart just so you both might get a good night of rest?
It's no fun for them I'm sure. Especially if we have seizure activity in our sleep!
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Hi kovy1991, welcome to CWE!
Talk to your neurologist ASAp, so can make a plan to adjust your treatment. If you and your husband are both sleeping poorly, that doesn't do either of you any good -- best to do as chargingbird advises above, and sleep apart so you can get caught up.
Talk to your neurologist ASAp, so can make a plan to adjust your treatment. If you and your husband are both sleeping poorly, that doesn't do either of you any good -- best to do as chargingbird advises above, and sleep apart so you can get caught up.
hi
hi ,
This happened to me in nov. . I was having seizures all the time . It felt like they were overtaking my body . I called my dr. asap and was crying on the phone and having seizures at the same time . He had me come in the next day and said that they might be due to stress . My mom and I knew he was wrong . I had an eeg done in the hospital , I was there 4 days and of coarse we were correct . I started having different s. that may be why he thought stress .We changed my meds . I went down on 1 and added 2 more . I now take 5 different meds , but by this sunday I will be down to 4 . I still have them all the time . I am also very lucky . I have been with my dr. , 22 years . Call your dr. they may progress , you'll probely need to add,subtract meds . Good luck jenn
hi ,
This happened to me in nov. . I was having seizures all the time . It felt like they were overtaking my body . I called my dr. asap and was crying on the phone and having seizures at the same time . He had me come in the next day and said that they might be due to stress . My mom and I knew he was wrong . I had an eeg done in the hospital , I was there 4 days and of coarse we were correct . I started having different s. that may be why he thought stress .We changed my meds . I went down on 1 and added 2 more . I now take 5 different meds , but by this sunday I will be down to 4 . I still have them all the time . I am also very lucky . I have been with my dr. , 22 years . Call your dr. they may progress , you'll probely need to add,subtract meds . Good luck jenn
Have you been sick flu/infection? have you taken any over the counter Vit./supplements?