Off to the Neurologist...

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Chris515

Veteran
Supporter
Messages
552
Reaction score
7
Points
133
Hey Everyone,

I hope I've put this in the right place...

Well I'm heading over to the neurologist this afternoon for my semi-annual visit.

I'm always a little nervous, not sure why. I've made a list of things I want to talk about. I've gone there and forgotten things more than once...

He's really nice and lets me talk and ask questions. Only problem is I can't get in to see him anytime. I have to make my next appointment six months after each one. Is this the case with anyone else?

I remember a few years ago my seizures suddenly increased in frequency and I started to freak out. I called to make an appointment, and they said I couldn't get in and I'd have to wait for my next appointment, which was 4 months away...

Much better than my previous neurologist about 6 years ago. I asked him if I could switch medications. I was on Tegretol for 11 years at that time and my side effects were getting worse. I was so drowsy, spaced out, my grades were slipping, and my hands were so incredibly shaky. He actually said "I think it's all in your head. You're imagining it. Your medication doesn't have those side effects." End of story, in his opinion. I got my refill and left. I was so mad that I didn't know what to say.

It took me 6 months to get a referral to another neurologist, who let me change over to Lamictal, no problem at all.

Sorry I rambled on there...

It has made me relax a bit to write all this down here! Thanks for listening everyone.

Chris
 
Thankfully I do have private insurance so I could change doctor if I needed too...well for at least the time being. I do have problem that it is hard to get in to see my doctor. I do make my appointments 6 months ahead too! But when I have called when I am having problems, they do have a wait list that I can get on...if he has cancellation or opening come up. I like my neuro too, he is very easy to talk to and welcomes my questions/concerns.
Best of luck on your appointment!
 
A wait list would have been great... my Dr. is so busy apparently that he doesn't even have one. He asked me to come in June, but his next availability was in July...

Thanks for the good wishes jgbmartin! It was a productive appointment.

Since my seizure patterns have changed in the last 6 months, he's upped my meds a bit and is sending me for an MRI. The claustrophobic in me isn't looking forward to that one.
 
Back
Top Bottom