Olo

[IamMe]

Hello,

I made it here! Yay! Ahem, I mean, hello everyone, I am new here and also new to epilepsy. I have complex partial siezures and until about two years ago didn't even know there were different kinds of siezures. I have learned a lot in a short amount of time and have found that there are so many people that know so little about epilepsy. It really is amazing. I have a pretty good doctor. Of course I would like to be the only patient and have the ability to call and have all my questions answered when I want, but I also know there are so many people just like me who need their questions and needs answered also. I get what I need for the most part and when I don't the nurses and techs hear about it and fix it so I can't really complain too much. I have some issues with meds but from what I understand its like that and I'm dealing. I haven't been on a lot of meds, but its still early and hopefully Vimpat will continue to work out.

I know my journey is far from over. I don't know what will happen, but I can tell you that I refuse to live any less of a life because of my "condition". I know there are restrictions, and different rules, but that just means I have to look at things from a different angle. I won't lie and say I am optimistic all the time, but the times I am not I look at my daughter and remind myself that no matter what I always want her to find the good in all situations because as her mother I wish her no pain and nothing but happiness. I know that is a little unrealistic, but it kind of helps because I always think of how sad my mom would be looking at me feeling sorry for myself.

Anywho, Olo everyone, hooray for being here!! :woot:

 

[Nakamova]

Welcome IamMe!

It's amazing how fast the learning curve with epilepsy can be, isn't it? Most people don't know the first thing about it until it affects themselves or a close friend or family member. CWE has been a terrific resource for me for getting acquainted with epilepsy, and I hope it can do the same for you.

Best,
Nakamova

 

[Bluesbrkr]

Welcome!!

Like you, I am pretty new to epilepsy myself. I was diagnosed about a year and a half ago. And as you said, it's amazing how little people know about epilepsy. They all assume it means that you flop on the ground and have to have a spoon stuck in your mouth. They don't understand how many different types there are and there is quite a stigma associated with it that I just don't understand. I was put on Vimpat to start with, but my Neuro switch me to different meds pretty quickly. Not to say that Vimpat isn't a good drug, just wasn't the right one for me.

But I think your attitude is great! you definitely have to live life and let your kids see you facing a trial head on and keeping her head up. We all have good and bad days with epilepsy, and no one can be optimistic all the time...

I've only been on this site a couple of weeks, but I have found it extremely helpful and comforting. It is a great place to learn, to see that you are not alone, and to share with others. I've found it very therapeutic...

Anyway... welcome again! and come often!

 

[survivor]

Liked ur ideas! Be positive like this only! keep posting!

 

[Cint]

Hi and Welcome IAmMe,

I see you're in Colorado, too. I do hope you keep your seizures under control and that the medicine does keep on working for you.

I've lived with epilepsy for 30 years, so keeping your chin up, always helps--even when the chips are down. C'mon back and chat with us again.