darkmarkshark
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I've been on the EF forum since I was diagnosed 3 years ago, but I finally encountered my last straw there.
My seizures are caused by certain smells. But every time i've posted that on the other site I've been immediately told that I can't be having epilepsy, don't belong on there, must not know what a seizure is, am misunderstanding my doctor, etc. If I offer up a link that helps supports some seizures are caused by smells, I quickly find a message in my inbox letting me know that I've received an official warning for starting a fight and insulting others.
I also have seizures due to stress and flashing lights. And just today saw a thread where someone was warned because they had a problem with being told that photosensitive epileptics don't matter because they make up less than .00001% of people with epilepsy. (a fight had ensued but the person making the mean remarks wasn't warned, only the one who was standing up against them)
Well i'm not here to rant about that site, so I won't bring up the million other similar examples. All I want to know is will be called a loser, idiot, dummy etc for talking about having these kind of seizures here? and then be told I'll be banned for trying to start a fight if I do anything other than smile sweetly and say 'thank you, you are exactly right' in response?
I don't want to get involved in another place where I am treated like dirt just because my seizures don't fit into the most common molds.
My seizures are caused by certain smells. But every time i've posted that on the other site I've been immediately told that I can't be having epilepsy, don't belong on there, must not know what a seizure is, am misunderstanding my doctor, etc. If I offer up a link that helps supports some seizures are caused by smells, I quickly find a message in my inbox letting me know that I've received an official warning for starting a fight and insulting others.
I also have seizures due to stress and flashing lights. And just today saw a thread where someone was warned because they had a problem with being told that photosensitive epileptics don't matter because they make up less than .00001% of people with epilepsy. (a fight had ensued but the person making the mean remarks wasn't warned, only the one who was standing up against them)
Well i'm not here to rant about that site, so I won't bring up the million other similar examples. All I want to know is will be called a loser, idiot, dummy etc for talking about having these kind of seizures here? and then be told I'll be banned for trying to start a fight if I do anything other than smile sweetly and say 'thank you, you are exactly right' in response?
I don't want to get involved in another place where I am treated like dirt just because my seizures don't fit into the most common molds.
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