Panic Attacks/Anxiety and Seizures

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AlmondHen

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Hi.
Okay, brief history;
Diagnosed with JME 12 years ago
Generally cope well - my seizures have always been while asleep so luckily for me, it's been non-traumatic, but unfortunately very traumatic for my loved ones :(
I'm suffering severely from panic attacks and anxiety of having a seizure out of nowhere (which I think is unlikely but it's a terrifying thought). Has anyone ever had there seizure pattern change like that before?
Also, do any of you suffer from epilepsy related panic attacks and do you have any coping methods?
I am seeing my doctor on Monday as I think I may be developing a panic disorder. But at the moment, I'm not sure how to get through the weekend.

Any help would be massively appreciated.

Thank you so much

Rachel

xx
 
I've had a big problem dealing with my diagnosis. I've had simple partial seizures for as long as I can remember but was sent to therapists who said they were migraine related so imagine when I had a tonic clonic seizure than 9 month later a drop seizure without anything provoking a seizure. I was in shock still am and the drop seizure happened 13 months ago. My anxiety was horrible literally a panic attack that lasted two weeks without stopping I was having attacks that would wake me up at night shaking crying and petrified. I went to therapy. They thought at the time it was psychogenic seizures until back in April when the EEG came back and confirmed genuine seizure activity. But when they thought it was psychogenic I learned a lot of positive affirmations which helped. It may not be possible to stop them but telling myself every time I was afraid that I was safe and would not have a seizure really helped. Any time I had a worrisome thought I talked it down in my head. Even when getting diagnosed and being told I would always have the chance of another seizure I was calm. Distractions also help a lot. I know it sounds too simple but finding a new hobby u really enjoy helps soooo much
 
Actually, I've got a BIG BIG thread about this same subject in this forum, but I TOTALLY get it.

I have JME as well and I believe I have GAD - that's a self-diagnosis. I'm constantly anxious, fearful and not knowing why, having a sense of 'foreboding' and then that makes me even 'shakier' and 'jittier' somedays with the 'jerks', so it's a double-edged sword.

I might be one of the few here who really get where you're coming from 'cuz I'm facing the same dilemma...

I'ma ask my new nero on Wednesday to re-up some Prozac or something I was prescribed years ago... maybe some crack.... just to liven things up...
 
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