Parediatricians appointment for my kids tomorrow

[Trinity]

Well tomorrow I have an appointment for all 3 of my kids to see about a possible diagnosis of fetal valproate Syndrome and Autistic Spectrum Disorder in my son. I made sure in advance that the doctor I am taking them to knows about FVS and a friend was able to tell me about this doctor who has done lots of research on the topic. His colleague who co-authored a paper on the topic will also be visiting during the appointment. He did tell me though that we may not get any real answers tomorrow so I am trying not to get worked up about it but it is hard. I really would love a diagnosis or some way to help my son out.

 

[Nakamova]

I hope you ask plenty of questions and get plenty of answers. Make sure you're clear on whatever the doctor tells you before leaving the appointment, and find out how to contact him if you have additional questions.

And let us know how it goes.

 

[Trinity]

Went well. As well as the two doctors there were also two medical students so it was a busy appointment. The main doctor in charge said he was not concerned about Joel having Autistic Spectrum Disorder as he is very social and has a good sense of humor. He also was not concerned with the girls but took photos of Joel to share with other genetic specialists he meets with once a month to see if they can recognise any subtle FVS facial features. Joel has to have a bunch of blood tests to rule out fragile x and other genetic disorders. Joel is also going to need to be referred to the local Children's Hospital with regards to his toe walking. FVS is a diagnosis of exclusion so everything else needs to be ruled out first and apparently some of the genetic tests will take 4-6 months for a result.

 

[RobinN]

I have one adult son who was diagnosed at 16 with Aspergers, and a daughter who has a seizure disorder, so I have done extensive research.
My son with ASD has had gut/intestinal issues and my daughter has been seizure free soon after we began addressing nutritional improvements.

I remember reading about toe walking a few years back at this website:

http://danasview.net

It seems that there are some ASD kids who have viral problems and some who don’t. No one knows exactly what these percentages would be, but many agree that somewhere around 30% of ASD kids who have received prescription antivirals respond favourably—however one wishes to interpret that. Of the kids who seem to have viral problems, it would seem that some can recover on their own by healing the gut, supplementing, and chelating. Other kids need help specific to their viral problem as well. Still some others seem to have only viral problems, or, at least viral problems are their main issue and resolving them seems to resolve all other problems.

What might viral issues look like in my child?

I have been unable to establish any precise list of what viral signs would look like—there is too much controversy. Some of the signs listed are considered soft signs while others are considered more valid indicators. It would depend on who you spoke to which category any of these possible indicators falls into. In researching this file I read many times that dealing with viral issues is sometimes like chelating autistic children: the only way to know for sure if it is going to work is to try it and do it properly.

Some children might display the following signs:

· Motor problems, including fine motor problems. Sometimes these problems are one-sided (often the right side seems weaker). Some people believe that toe-walking is also a sign.
· The child seems to move from improved behaviour to more autistic behaviour for no apparent reason. These cycles of progression then regression might last weeks or months.
· Less autistic behaviours during and immediately following fevers followed by a return to more typical behaviours after this time has passed.
· Chronic viral-like illnesses or no symptoms of ever being sick.
· Negative reaction after MMR vaccination.
· Cold sores/fever blisters/unexplained sores in or around mouth. Warts, plantar warts.
· Continual gut problems in spite of all possible efforts to alleviate them.
· Improvement while on antibiotics—this may be a result of a concomitant bacterial problem.
· Hyperactivity
· OCD, scripting, repeating fairly meaningless actions (tics) or sounds.
· Staying in own world (see for example the recovery video of Ethan as mentioned below for this last one).
· Sensory integration disorder, eye or ear sensitivity
. Hypotonia.

http://www.danasview.net/virfile.htm

 

[epileric]

Before you pay too much attention to thatWebsite realize that Dana is a lawyer.

Hello, my name is Dana and I am 41 years old. I am an attorney

I would not go to a lawyer for medical information any more than I would go to a doctor for legal information. Also realize that there has never been any indication that viruses can cause autism or that antibiotics help. All evidence has been anecdotal so far. Anti-Viral Nonsense.

Also, It has been conclusively proven that Autism is not caused by the MMR or any other vaccine http://www.nytimes.com/2011/08/26/health/26vaccine.html?_r=1. One of the situations that proved as much was when they stopped giving the vaccine in Japan but the incidents of autism still rose. http://www.newscientist.com/article/dn7076-autism-rises-despite-mmr-ban-in-japan.html. Also, Andrew Wakefield who initially started that rumor was found to have not conducted his experiments properly then still lied about the results. As well he was paid by a lawyer who represented people who wanted to prove the vaccine caused their childs autism. http://briandeer.com/mmr/lancet-summary.htm

Keep us updated on how things go with Joel.