parietal lobe epilepsy

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matsuiny2004

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Is there anybody here that has parietal lobe epilepsy? I want to know since I am not sure if i have it or not and want to know what the symptoms are. I would also like to know your expeiences with it. Expereince would be more helpful since it is so hard to find information on. How you got diagnosed would also be helpful. It would at least help me.
 
Have you been diagnosed as having parietal lobe epilepsy? That's the first thing we need to know. The parietal lobe of you brain is situated in the centre to back of your brain, just above the back part of your head. If you put your hand on the lowest part of the back of your head, that is the Occipital lobe, used for vision, Your Parietal lobe is in front of that again towards the centre & middle of your brain.

What symptoms can you describe? (I'm no dr., but there are people on this site who are qualified to do so and can answer your questions more fully than me.)
 
No I have not been diagnosed with it. Trying to is a real pain. I am hoping to do testing as well as have more in depth eeg's. the 1 hour one was normal. I have a histroy of seizures that were chronic. I am on trileptal currently. Used to take Celexa and ritalin.

I experience random tingling, and burning

disorganized thinking

had a hard time with left and right

abdominal pain, feel like I will throw up

used to experience deja vu

I experience random stinging sensations

random tinnitus

seizures

random respiratory problems

random auditory hallucinations (mostly musical and some voices, I know they are not real)

difficulty with visual spatial task

difficulty on the mental rotation task as well as most visualizing tasks which I read need the parietal lobe.

obssesions

had pain in kidneys recently so far only happened once and only for today
 
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You need to see a neurologist and have an EEG done to correctly diagnose whether or not you have parietal lobe epilepsy. I'm not a dr., but some of what you describe there soesn't seem to fit in within the proper definition of epilepsy. I stand to be corrected on that.

For example kidney pain could be indicative of kidney stones, tinitis is a hearing issue, but I don't know if the rx can affect that. That's usually indicative that the hairs on your inner ear are slowly dying. I've had tinitis for several years and it's hereditary with me. Did you go to any loud concerts and not wear ear protection?

Most importantly, are you on any Rx? The side effects of certain Rx can cause the symptoms you're dwescribing. Again, I'm no authority, but I'd check with a pharmacist and then your GP for a neurologial consult. To try and self-diagnoase something when you're not qualified to do so is very dangerous and unwise.
 
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Tinitus is something I have had since I was younger- it had to do with my deafness though. Some RX do cause Tinitus or are "auto-toxic" and can cause hearing loss or damage- but not any seizure med does that I know of.

I agree with most people here- GO TO A DR AND GET NEURO REFERRAL.
What did your last neurologist say about your EEG?
Did you let that neurologist know about your symptoms you have now? If so, what did he/she say?
Even if your EEG is normal, doesnt totally rule our Epilepsy.
You said you had a seizure history? What kind of seizures within your history or currently do you have?


I hope things will get better for you and please let us know how things go.

Take care,
Crystal
 
I used to have atonic, myoclonic, complex partial ans secondary general seizures. I am going to look at the documents. My eeg's used to show up abnormal too. I was more recently given I diagnosis of temporal lobe epilepsy becuase I was having constant deja vu, but thanks to trileptal I don't anymore. All recent eeg's are normal. I have experienced almost daily Auditory hallucinations which are mostly musical as well as random tingling and burning sensation. buzzing and ringing sounds in my ear are experienced almost daily, As well as disorganized thinking. Right now I am trying to see what else could be going on and attempting to localize my problem. I am planning on seeing a neuropsychologist as well as getting a 24 hour eeg and if needed a video eeg. I also want to see an epileptoloigist. I think they would help me much more than my neurologist. I was more interested in seeing if there were people on this forum with the condition and what their expereince was and the symptoms they had since parietal lobe epilepsy is underresearched. One of the symptoms is tingling and burning sensation and it can effect other lobes of the brain and appear to be temporal lobe epilepsy or frontal lobe epilepsy.
 
Hi --

The following is from a standard description of Parietal Lobe epilepsy:

"Since the parietal lobe involves the processing and integration of sensory and visual perception, seizures originating from the parietal lobe can involve both sensory and visual sensations. Seizure duration varies, from a few seconds in some patients to a few minutes in others. The following are the different types of symptoms associated with parietal lobe seizures:

Somatosensory Seizures: Patients with these types of seizures describe feeling physical sensations of numbness and tingling, heat, pressure, electricity and/or pain. Pain, though a rare symptom in seizures overall, is quite common in parietal seizures, occurring in up to one quarter of patients.

Somatic Illusions: During a somatic illusion, another common symptom of parietal seizures, patients may experience a feeling like their posture is distorted, that their arms or legs are in a weird position or are in motion when they are not, or that a part of their body is missing or feels like it does not belong.

Vertigo: Patients with parietal seizures may experience a sensation of movement or spinning of the environment, or of their body within the environment.

Visual Illusions and Hallucinations: Patients with visual illusions report a distortion of visual perception: objects seem too close, too far, too large, too small, slanted, moving or otherwise not right. A patient with hallucinations describes seeing objects that seem very real, though in fact they do not exist.

Language Disturbances: Rarely, a patient with a parietal seizure will report difficulty understanding spoken words or language, difficulty reading or performing simple math.
 
I have Partial Complex Epilepsy that takes place in my parietal lobe AKA Parietal Lobe Epilepsy. I get amnesia and can't remember the events that happen during my seizures. I get a feeling of not feeling "all there" and sometimes things can look all distorted or my body doesn't feel like it is how it is supposed to? I dunno I feel like it's not real. Sometimes I will just go unconscious and it can go into a second generalized seizure... I'm not much help because I'm looking for info on this too... because I just got diagnosed with this...
 
Hi KieiJei, welcome to CWE!

Feel free to post an intro in "The Forum" so others can welcome you properly...

Best,
Nakamova
 
I have been diagnosed with Parietal E

Hello, only just found this thread, I don't really have much info to be honest.

I was diagnosed by way of a 5 day video EEG, bummer whilst happening but well worth the bother to get a definitive diagnosis.

I am very scattered in my thoughts, can not plan or remember anything, I'll walk off mid task and forget what I was doing. Frustrating to say the least.

I get the massively painful ice pick headaches, really do feel like u r being stabbed in the head. I also get an electric shock through my left hand very regularly, that hurts too.

I get a head creep as I call it, it's weird, like a million spiders running over your scalp.

I can't do mathematics anymore (I was a civil engineer), even the simplest of stuff. I can't grasp the simplest of spatial problems now either. I get lost constantly, something I find distressing. When I go shopping I don't know which way I've just come from, makes u feel a bit stupid.

I have difficulty speaking sometimes, especially when tired, I'll stutter or just can't say anything at all, very embarrassing in public.

I get a horrid whirring kind of tinnitus too which can stop me sleeping. I also have very very vivid dreams, so although I may sleep all night, it isn't good sleep.

I regularly have tics, they could be in my chin, eye, hand or even my bum! They can go on for an hour or two.

I have also had 5 full blown tonic clonics, one whilst in the hospital hooked up to the Video EEG. So the last one I count as a blessing really.

I wrote all this because finding any info on Parietal Lobe Epilepsy is very difficult, this is because only around 5% of epilepsy suffers have this kind, so as with everything I have to be difficult!!
 
Hi toriandbilly. Welcome to CWE. I'm so glad you found this forum and especially revived this thread. I'm trying to figure things out myself and your post is very helpful t me.

I'm sorry your life has taken this turn. It sounds like you were doing well then the seizures hit later in life? That's my story also. I have many similar symptoms to yours.

At 42 (working three jobs and really smart) was in a car accident where I got a concussion. They say I have post concussive syndrome. I saw a neurologist because I suffered from head aches, nausea and dizziness several times a day for six months straight, now its way less frequent. But turns out my EEG was abnormal and my MRI was abnormal with white spots all over. Anyway, my symptoms always seamed much worse than the post concussive symptoms, but my neurologist has been no help.

Your post has helped more than she ever has. I do not have the severity you have, but I do have all these same symptoms. So, do you mind sharing a little more? How did you get it. How was it diagnosed? And did it start like mine (mild) then progress to where you are now or did it start with your symptoms you have now? And do you have these symptoms between seizures?

I don't feel mine has been progressing. Its actually better since episodes are less frequent. So mixed up thinking is only during those episodes. In between, I am not my normal self, but I can do daily tasks like bills. If anything gets too hard ( which doesn't take much) I go blank. Get confused. Feel stopped dead in my tracks. And just sit there half frozen until I realize what's happening. And yes it makes me feel so lame.

Anyway, this forum is amazing how people come together and help each other as you have just helped me. I hope you find the same help you need. :):):):) :) I can't thank you enough for this post :)
 
Blimey, I'm so glad to have been of help!

U r right, life was great (and is pretty good now too generally), I'd resigned from my engineering job in England and gone to live in Spain to teach English. I'd been there for 6 months (with my dog Bill) and I met my partner, we moved in together and all was good, lots of work etc.

We'd had a lovely day and settled to watch our fav. tv programme and I tried to turn to Sean and tell him I felt funny and I just started gibbering, the thoughts started racing, I thought I was having a stroke, he thought I was messing about, until I started to seize.

I don't remember anything for the next fortnight, I was diagnosed with a heart problem and took meds for a few months and then seized again. Various trips to neuros (I've had 4 now) different meds (my heart seemed to settle down thankfully) and then finally a good neuro who sent me for a Video EEG.

This is how I was diagnosed, hooked to an EEG and videoed for 5 days and slowly taken off my meds. I seized on the 5th day, they found where it was coming from and discovered a small scar which is probably the cause.

Am well medicated now, I take Zebinix and Depakine, pretty low doses but I feel good.

I still have tics and electric hands and the confusion is ever present really. All of these things moreso when tired. The interesting thing is my speech trouble usually doesn't occur in class, my neuro reckons I use a diff part of my brain when I'm working (still can't even add up then though).

I was, I think 36 when it all kicked off that night on the sofa, I'm 41 in 6 days, it's taken a long time to get sorted, u just have to persevere and find a good neuro.

Something I do have trouble with is not knowing why or how it happened, my niece, brother and father all have E too, all late onset, except my niece, she was 3. There does seem to be a familial problem. My brother was lost to SUDEP almost 2 yrs ago.

Glad u seem the nausea etc is less frequent, as for your neuro not being helpful change, get another one. I've read a few posts on diff forums and it would seem that many people have bad ones, here in Spain, doctors think they are gods and not to be questioned in any way. I was so fortunate to find a good one, and he is not a private one, they were all rubbish.

Log all the things, feelings etc so u can show the neuro, if there is anything happening, like me with tics, video it, they can't ignore those, I found my mobile phone invaluable for this.

Mobiles are also good for setting alarms to take meds. I run my little academy from the calendar on my mobile too since I can't even remember 4 things on a shopping list, and that's when I'm trying really hard.

All the best.
 
Hey Julie, your Neurologist said the white spots are related to the accident & your seizures? I have a couple of white spots on my brain and I'm sure I've suffered a concussion or two.
 
No, my neurologist didn't say squat after many tries I gave up asking about them. She said I could have had them prior to the accident and that she'd recheck them in four years to see if they get worse. Phhhhfttttt!!!!! Four years my ass :) sorry, but she makes me so mad :). I will be having this rechecked much sooner and getting some answers much sooner from a neuro who gives a heck about me. Phew, glad I got that of my chest... lol.
 
I have a great Neurologist, he's doing everything he can for me and I see him every six months for follow ups and he always asks about any symptoms and stuff. Very nice man and an expert
 
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