We saw my sons Paed yesterday and showed her some of the recent footage of his event. It was quite confronting to have her sit their and go "absent seizure", "partial seizure", "Shudder" etc to basically everything we had filmed. She has been so anti him having an MRI but after seeing the footage has said she now wonders if he has a growth on his frontal lobe. Way to scare "mum" He has had 3 clean EEG's but his Nureo said that doesn't rule out Epilepsy as he and other Nureo's agree he is having "Epileptic Events" and we have been told they will prob do another EEG at his next apt in Dec as he is so young, 10months, and babies brains change so much. He also has thought about an MRI but has said we have "time" on our side as if it is anything he has had clear EEG's and his Ultrasound, what pic they were able to get, was OK. He is a normal boy most of the time but when he has his seizures he can often have a 3 1/2 hour sleep after them.
I know its not easy to diagnose what is going on but i just wish we could get further with his diagnosis. I am happy to not medicate him as at the moment he's not yet crawling and hopefully he will grow out of them or they will sort out whats going on before he is more mobile when they could become more dangerous if he falls when having them.
Has anyones child been found to have a tumour casuing their seizure?
Donnajane
I know its not easy to diagnose what is going on but i just wish we could get further with his diagnosis. I am happy to not medicate him as at the moment he's not yet crawling and hopefully he will grow out of them or they will sort out whats going on before he is more mobile when they could become more dangerous if he falls when having them.
Has anyones child been found to have a tumour casuing their seizure?
Donnajane