Photo sensitivity update

[RockerMama]

We had an appt with the neuro today. She ordered an EEG for my son, so I am waiting for that to be scheduled. She didn't give me any ideas of what it could be, other than seizures. He had a 5 day video 2 and a half years ago that was totally normal, but she said enough time has passed to see if there is a change. I am not sure if it comes back fine what the plan is. Lots of unknown right now until we do the EEG.

 

[Nakamova]

More wait-and-see -- no fun. Hang in there.

 

[donnajane]

I hate the wait and see but sadly sometimes thats whats needed.
Take Care,

 

[donnajane]

Forgot to say my little man has had 4 clear EEG's, the 5th showed a slowing on the back right of his brain but his eye's also rolled up when they did the light test but they said his EEG didn't really alter, it was a bit unusual but can happen. He was what they think are a absence event/s plus other events although the Nureologist said he is only going by the footage we have shown him as nothing has shown to indicate them on his EEG. He does have a lesion in his brain on his putamen but his Nureologist said it may explain his events but he can't be sure.
It is so hard to work out what is really going on also when so they are young and can't explain how they feel etc as well. My little man will be 22 months old in just over a week and we can't wait until the day he has is able to let us know about what is happening, if he is able to.
Donna