RockerMama
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Oh boy, where to start? I posted a bit here last winter while my daughter(7) was going through testing for epilepsy based on mainly aura/sensory based symptoms. We went through a lot of crud from some really awful Drs before meeting one that listened. After putting her on Depakote sprinkles, her symptoms almost entirely cleared up. We switched her to tegretol, and her symptoms did completely clear up.
Unfortunately, the wonderful neuro no longer accepts are insurance, and the out of pocket pay is just too much. We have a recommendation from him for a new Dr, so fingers crossed he is also good.
Also, unfortunately, it seems my son, Bubby(3), is now needing a neuro again, too. When he was 11 months he had a cluster of atypical febrile seizures. After a 5 day video eeg, they ruled it was just unusual, but fine. He has continued to seize with low temperatures, which while difficult to see, hasn't been too bad. He has an insanely high pain tolerance, never acting sick, so the seizures are normally the way we find out he is sick.
Two weeks ago, while in a dark room with candles(my seven year old wanted breakfast by candlelight, silly girl) Bubby completely zoned out starring at the candle. Like he was in a trance, he wouldn't respond to anyone, short of a low guttural noise. After the candles were blown out, the light was on, and he was removed from his little table and put on the couch, he started talking and was soon back to normal. We brought him to the Dr, who dismissed the episode as him still being tired, or just ignoring us. According to her, photosensitivity causes tonic clonic seizures, not him to zone out. And that absence seizures are short, not lasting minutes.
I had read that the photosensitive seizures COULD be absence. If that is the case, then wouldn't the absence seizure continue because he was still starring at the flickering candle?
Anywho, he hadn't had another episode, so I figured maybe it was just a fluke. That is until Friday when we went to the movies. During the credits, as we were getting ready to leave, he stopped responding to us, though he kept looking to the side(not jerky/fast). In all of his seizure plus these two "episodes", his face has gone blank. My husband picked him up and tried to get him to stand, but he wasn't fully supporting himself. It only lasted about a minute and a half, start to responding normally(which happened once we were to the door of the theater). My hubby brought him to the Dr on Saturday, where the on call Dr said it sounds like a seizure, and to call the neuro we do not like. Which I am hoping to avoid and find someone else.
Can photosensitivity cause absence seizures? Is it considered epilepsy? If so, is it common for two children to have two different forms of epilepsy? There is so much I never knew about that I am learning.
Unfortunately, the wonderful neuro no longer accepts are insurance, and the out of pocket pay is just too much. We have a recommendation from him for a new Dr, so fingers crossed he is also good.
Also, unfortunately, it seems my son, Bubby(3), is now needing a neuro again, too. When he was 11 months he had a cluster of atypical febrile seizures. After a 5 day video eeg, they ruled it was just unusual, but fine. He has continued to seize with low temperatures, which while difficult to see, hasn't been too bad. He has an insanely high pain tolerance, never acting sick, so the seizures are normally the way we find out he is sick.
Two weeks ago, while in a dark room with candles(my seven year old wanted breakfast by candlelight, silly girl) Bubby completely zoned out starring at the candle. Like he was in a trance, he wouldn't respond to anyone, short of a low guttural noise. After the candles were blown out, the light was on, and he was removed from his little table and put on the couch, he started talking and was soon back to normal. We brought him to the Dr, who dismissed the episode as him still being tired, or just ignoring us. According to her, photosensitivity causes tonic clonic seizures, not him to zone out. And that absence seizures are short, not lasting minutes.
I had read that the photosensitive seizures COULD be absence. If that is the case, then wouldn't the absence seizure continue because he was still starring at the flickering candle?
Anywho, he hadn't had another episode, so I figured maybe it was just a fluke. That is until Friday when we went to the movies. During the credits, as we were getting ready to leave, he stopped responding to us, though he kept looking to the side(not jerky/fast). In all of his seizure plus these two "episodes", his face has gone blank. My husband picked him up and tried to get him to stand, but he wasn't fully supporting himself. It only lasted about a minute and a half, start to responding normally(which happened once we were to the door of the theater). My hubby brought him to the Dr on Saturday, where the on call Dr said it sounds like a seizure, and to call the neuro we do not like. Which I am hoping to avoid and find someone else.
Can photosensitivity cause absence seizures? Is it considered epilepsy? If so, is it common for two children to have two different forms of epilepsy? There is so much I never knew about that I am learning.