Photosensitivity trick? Myth?

[LJ-Bain]

I sometimes find that I am a little bit photosensitive.
I had read somewhere that if you close one eye that this is
supposed to prevent a seizure from occuring.
Fact of fiction?
Has anyone heard of this or tried this?
Whenever I see a police car up ahead I do this and I don't seize but
I don't know if this is a coincidence.

Thoughts?

 

[chop456]

I'd love to hear opinions on this. I think my DD has a bit of photosensitivity. When we were in Disney last year I did tell her to cover one eye on the rides that had flashing lights. Her picture from Rock n Roller Coaster has her covering her eye with one hand the the other hand in the air riding the ride!

On a more serious note, when we are driving to school each morning, she HAS to have the visor down and moves it according to the sun. The light shining thru the tree at the faster rate has caused her to have myoclonics. Ugh. Maybe tomorrow morning I'll have her cover an eye.

 

[MaryK]

I do not believe it is myth because it has worked for me...light through trees, etc LJ- I think you have instinctly done this and it is probably working, which anything that keeps us from having a seizure is great!
Here are a couple links for photosensitive epilepsy that described covering one eye and turning away.

The light shining thru the tree at the faster rate has caused her to have myoclonics. Ugh. Maybe tomorrow morning I'll have her cover an eye.

Wow, how old is your daughter? I so remember this when it first started happening and the speed does make a difference.

http://www.epilepsy.org.uk/info/photosensitive-epilepsy

http://www.epilepsyfoundation.org/aboutepilepsy/seizures/photosensitivity/index.cfm

 

[chop456]

The light shining thru the tree at the faster rate has caused her to have myoclonics. Ugh. Maybe tomorrow morning I'll have her cover an eye.

Wow, how old is your daughter? I so remember this when it first started happening and the speed does make a difference.

I would venture to say this happened right around the time of diagnosis - February 20, 2012 (but who I am to remember the exact date!!!). She did mention to me that when she would go running and the light would shine thru the trees sometimes she would black out. Not for long - just a second or two. This was September, 2011 - which is most likely when everything was just starting with her JME. She has not mentioned the running/light issue in a long time. But the sunlight and driving - she cannot stand that.

Question - are you able to drive with the photosensitivity? How do you manage when it is bright, etc. Do sunglasses help to control? Paige is 14 and I am wondering how she will manage driving.

Thanks!

 

[LJ-Bain]

I am not able to drive but I have alot of simple partials and I have to be seizure free for a year so, I have still yet to have that happen but someday it will! I hope.
I find that sunlight and driving can still trigger it. Especially light getting closer to the end of the afternoon when the shadows are longer and the sun is bright and I'm tired...
I know there are people who are more photosensitive than me though and so far I seem to do alright without sunglasses but I hope others will pipe up with their experiences.
I do hope your daughter will be able to drive in the future!

Thanks Mary K for the quotes! Kind of you to look those up!

 

[KarenB]

I just posted a link in the Sunshine & Seizures thread -- apparently the one eye trick really does work -- you could even wear an eye patch.