I have been on Dilantin for 17 years and Neurontin for probably 10 years. I haven't had a generalized seizure in 7 years or an aura in over 3 years.
9 months ago, I got off Dilantin due to bone loss. After finishing the tapering off process, I noticed I was swimmy headed from time to time, at times don't feel mentally sharp, and noticed libido loss. These are effects I did not feel when I was on the Dilantin only after I stopped the Dilantin.
I am beginning to feel like my life is slowly being taken away from me. As I said, not feeling mentally sharp, and swimmy headed feelings make me not want to be around others because I just dont feel right.
I am not married and have no girlfriend, and the lack of libido makes me not want to try. I have been told by one doctor that the swimmy headed feeling and lack of mental sharpness could be sub - epileptic activity and maybe I should go back on more meds. Even though it doesnt feel or act like any aura or seizure I have ever had before.
I have been told by another doctor that I am doing great by not being on the meds (since no seizures) and these effects could be from the neurontin, and he wants to start removing the neurontin.
I have also heard that these effects could be long term effects of Dilantin.
Can anyone help me? I am desperately seeking advice on what to do , and I am scared this all is some permanent side effect on my brain from years of Dilantin. Has anyone experienced this coming off of Dilantin? As an effect from Neurontin (I am only taking 600mgs per day)? Will it go away?
I am almost ready to give up..
Thank you.
9 months ago, I got off Dilantin due to bone loss. After finishing the tapering off process, I noticed I was swimmy headed from time to time, at times don't feel mentally sharp, and noticed libido loss. These are effects I did not feel when I was on the Dilantin only after I stopped the Dilantin.
I am beginning to feel like my life is slowly being taken away from me. As I said, not feeling mentally sharp, and swimmy headed feelings make me not want to be around others because I just dont feel right.
I am not married and have no girlfriend, and the lack of libido makes me not want to try. I have been told by one doctor that the swimmy headed feeling and lack of mental sharpness could be sub - epileptic activity and maybe I should go back on more meds. Even though it doesnt feel or act like any aura or seizure I have ever had before.
I have been told by another doctor that I am doing great by not being on the meds (since no seizures) and these effects could be from the neurontin, and he wants to start removing the neurontin.
I have also heard that these effects could be long term effects of Dilantin.
Can anyone help me? I am desperately seeking advice on what to do , and I am scared this all is some permanent side effect on my brain from years of Dilantin. Has anyone experienced this coming off of Dilantin? As an effect from Neurontin (I am only taking 600mgs per day)? Will it go away?
I am almost ready to give up..
Thank you.