please help.

[stevicoyefish]

I was diagnosed with epilepsy when I was 26 and medicated for years there after. I didnt really think my epilepsy was that serious though honestly. As long as I knew my seizures were coming I was fine handling them. Ive been off meds for a year and a half now, and I feel really dumb.. I feel dumb bc I never educated myself on my disability, and now that I am off meds Im realizing that things that were happening and things I was doing and getting frustrated with myself over bc I was "crazy" was really epilepsy! I just thought the few gran mal (is that even how you say it? embarrasing..) that I had were all that epilepsy was. I never knew about all of the other symptoms and various types of seizures! Now I am realizing that I have been having seizures several times a day! Anyway, I realized this a few days ago after I finally started to research. Ive also been dealing with a tremendous amount of stress over the last few days, and Im thinking bc of this overwhelming feeling my body is wanting to crash. My body aches, I want to sleep all day, I feel dumb and cloudy, its hard to even put energy in to typing this! My question is (finally after all that!) is there anything I can do to get out of bed and feel better? Does anyone else get like this and is it even related to my epilepsy at all? Does anyone have any advice on where I should start my journey now that I know how serious this is?! Help however you can please!

 

[Fedup]

stevicoyefish

Welcome Coping With Epilepsy. Everybody here will try and help. Some feel tired all day after a seizure and just want to sleep, others have no energy and a lot have all combined because a seizure takes a lot out of a person and yes it is serious but not enough that you lock yourself away. You need to learn more about epilepsy and start a diary for your self. This way you can track your seizures, time, date how you feel and more. You can also write down things you feel may be triggers for you and stress is one which can be a big trigger

I was diagnosed with grand mal epilepsy now its called tonic clonic which is probably more accurate in ways, but yes grand mal is correct. Your seizures could be making you tired and a lack of energy. To feel better listen to your body and rest. You might also want to cheek vitamin levels for yourself.

 

[Nakamova]

Hi stevicoyefish, welcome to CWE!

Please don't feel "dumb" or embarrassed -- most of the world has no idea that epilepsy can involve many kinds of seizures, not just the kind with convulsions and loss of consciousness (called grand mal or toni-clonic). Fedup has great suggestions -- try and learn more about the other kinds of seizures you may be having (called Absences, and Simple and Complex Partials), and start regularly tracking how you are feeling so that you can get a handle on what's going on what any triggers might be. Write down all your symptoms and get in touch with your neurologist. If your symptoms are progressing in frequency, duration, or kind, or if they are otherwise interfering with your daily life, then you need to come up with a treatment plan -- possibly going back on meds.

In the short-term, listen to your body -- if you need sleep, go ahead and sleep. Fighting it off may lead to more stress and fatigue, as well as the potential for seizures. If you are missing meals because of fatigue or confusion, make sure to get back on track -- having low blood sugar or being dehydrated can also put you at risk.

These links have good basic info about seizure symptoms: http://en.wikipedia.org/wiki/Simple_partial_seizure
http://en.wikipedia.org/wiki/Complex_partial_seizure
http://en.wikipedia.org/wiki/Absence_seizure
http://en.wikipedia.org/wiki/Tonic–clonic_seizure

You should also feel free to explore the archives here at CWE, and post with any additional questions.

Best,
Nakamova

 

[jyearta]

Wanted to welcome you.

On the two prev. post Fedup and Nakamova has given great advise.

For many years when my seizures were not under control like they now, my energy level was not a problem. Now I having more problems with my energy level than the seizures (I'm on Dilantin and Clonazepam)

My Vit. B-12 was VERY low.

Hope you get see a Neur. and get the help you are needing.

Don't be embarrassed, when I go back and read some of my post, it's like my mind is not working with my hands.

 

[stevicoyefish]

thank you all so much for your help..im thinking ill just lay in bed until im better! Tomorrow I will be contacting the epilepsy foundation in my area for help, so hopefully i can get on the right path with a start there.