Please help!

[scaredycat]

Hi Friends,

Does anyone else on here have trouble describing their symptoms of a seizure?? I have terrible trouble describing them. Today I had an episode while I was on my way to shops and I had to pull over. It was nothing major, just feeling sort of dizzy, sort of out of body, sort of like I couldn't focus... but I just can't think of a word for what I felt and everyone including neuro and bf are getting terribly frustrated with me because I just cannot name what it is I feel when I have an episode, I think to the point where people are doubting me, including me. Please tell me someone else has this problem?!?!?!? Or maybe I am just imagining things - I don't know anymore.

 

[CQ:)]

Scaredycat,

Is it possible that you had a simple partial seizure or an aura?

I used to have trouble describing my aura because I could only remember some of it. The way I described was that I had a funny dream come into my head (only ever remembered the dream when I had an aura), my head felt a bit funny, things might start to sound blurry & I would get the urge to go to the toilet. Quite often when I had this feeling if I was somewhere that a toilet was nearby I would get up & go to the toilet.
When I described the aura to my local neurologist he said he thought they were auras (or as he described it warning seizures). It wasn't until I started coming in here that I learnt more about auras.

I don't know if you are keeping a seizure diary but if you do have any more of these feelings it might be a good idea to write them in a seizure diary describing the best way you can how you felt, how long it may have lasted & if anyone saw it what they witnessed (eg did you talk different, did you do something strange, stare into space).

I hope you get some answers.

 

[Nakamova]

I've experienced something similar a few times. For me the feeling seems a bit like when you're very tired, sitting in classroom listening to a lecture, and from time to time you nod off into a dream -- but for no more than a microsecond. You can't quite focus on the dream, and you can't quite focus on the lecture. And it's not a pleasant sensation.

 

[nicholas:)]

It's always important to jot these down - describe them in away that you know what they mean. If you don't record them, the next time you have one you will not recall when the last one took place. Jotting them down could lead to a pattern - you may find the 'trigger(s)'.

I was terrible at describing my simple partials and auras. In the beginning it is only you who needs to understand the auras.. the more you have, no matter how different they may be, the better you will become at describing them.

Key thing, again, is to jot them down

 

[ak<3history]

I get this every time prior to a seizure, I always just wrote it off as feeling sick since I couldn't think of a way to describe all of the small things I was feeling, including dizziness, being spaced out, not feeling entirely in my head or in the physical setting I was in. I used to hear words in my head during an aura, and then not be able to repeat it afterwords, I recognize the words as soon as that aura starts, but I have no idea what in the world those words are when I'm not having an aura. The doctors and my parents used to get very frustrated with me, and tried to guess a hundred times what it might be but so far no luck! anyways I know that feeling and it sucks, you're not alone, and you're not crazy!