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lizzyb831

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I havent posted in a long time, so hello to everyone!

So I went on medical leave from work end of October due to having seizures at work and freaking out since the seizures were getting up to having 5-9 a day, and still without any diagnosis from my previous neuro. Had an appt at Stanford Hospital, and at that appt I had one there, she was able to diagnose me with Frontal lobe partial seizures. So I have been on Oxcarbezipine (Trileptal) and Clonazepam (previous meds from previous neuro) since then. So with 4 months of med leave and long days with my fam, who were my nurse/bodyguards in case I fell, I have been seizure free since December 31!

-A few side effects from going through all of this - my memory seems to have gone to s**t at times. Probably from meds or dunno if seizures cause it too. But I get these "brain farts" all the time where I forget things or forget what I'm about to say, or don't remember things period when people talk to me about stuff.
-Meds also cause some normal side effects - the drowsiness, etc.
-My dad thinks I have been more emotional, I and the doctor have told him that it's more situational, that this has been scary and that it's difficult having to go back to "normal life" with work and being away from my family again. Even though I haven't had one for this long, it's still there in your mind of "when is it going to happen again???" and you never know...
-I've been dying to get my car back because it sucks not having a car and not being able to do what you used to do. I'm close to getting it back, my dr sent paperwork to DMV to release my suspension, so just waiting on what DMV says.

So the past few months have been positive and hope that it continues for a long time.

After going through this for the past year and for the rest of my life - the memory of having them, the worry of having them, and the reminder everyday from having to take pills, I keep everyone who is dealing with epilepsy in one way or another in my thoughts and prayers and always hoping that people are able to get through this and that drs are able to find cures or better assistance in dealing with it. :e::e::e::e::e:
 
Hi Lizzy,
That's great news that you have been able to get your seizures under control & are almost 4 months seizure free.
Are you still on leave from your job or are you back at work?

- my memory seems to have gone to s**t at times. Probably from meds or dunno if seizures cause it too. But I get these "brain farts" all the time where I forget things or forget what I'm about to say, or don't remember things period when people talk to me about stuff.
The memory issues seems to be a common issue for most of us & it can be from both the side effects from the meds & the seizures.
My memory isn't real bad at the moment but I still have times where I will forget what I was doing & what I was about to say.

- Even though I haven't had one for this long, it's still there in your mind of "when is it going to happen again???" and you never know...
I understand that feeling of not knowing if you will have a seizure again.
I have been 2 years seizure free since I had my brain surgery, I am confident that I can remain seizure free but I still refuse to say that I will never have another seizure.

-I've been dying to get my car back because it sucks not having a car and not being able to do what you used to do. I'm close to getting it back, my dr sent paperwork to DMV to release my suspension, so just waiting on what DMV says.
Good luck with getting your licence back.
 
It's good to here that things have stabilized for you. Make a note of those "brain fart" moments -- your neuro may be able to help you figure out whether they are med- or seizure-related.

Hope you are safely and happily behind the wheel soon.
 
@CQ - 4 months off and now I'm back to work - going on almost 2 months now. was on a month of transitional work, which ended up being 2 weeks and then getting thrown back into normal stuff even with the dr guidelines :/ the meds sometimes get me drowsy/out of it, so it's hard sometimes with the job i have, so the dr changed up my med dosage to see if that helps. I didn't want to just cause I didn't want it to effect how i was doing lol

@nakamova - thanks!!! Yeah, I've told her about it when it was happening before and a my last appt. she says that it's probably the meds and that i should be adjusting to it over time and it won't be a problem. but doesn't help when i have to be on my toes talking to people - i work at a hotel and people ask a lot of questions lol
 
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