Lamictal
My son was diagnosed with epilepsy in 2009. Out of the blue, he had a grand mal seizure a month after graduating from college for no apparent reason. No trauma, no drug use, no reason at all. It took over 4 years to get the right combination of medication in order to control his seizures 90% of the time. It was a sleepless four years. He is now on a comination of generic Keppra and name brand Lamictal XR. He tried generic lamictal (Lamotrigine) in many different doseages and for many months, and it stopped his grand mal and simple complex seizures but caused cluster seizures every week. The problem is my son is insured through his employer but his copay for the Lamictal is still $511 a month. It was over $600 with CVS, but we now switched to Walgreens. My son cannot afford $511 a month for the rest of his life. I am a single mom and cannot afford it either. Our doctor has filed two appeals on our behalf but both have been denied by BlueCross CareFirst. My son and I have contacted the pharmaceutical company, prescription assistance companies, the health department, etc. and he cannot get any help. We feel as if the rug has been pulled out from underneath him. For the last six months he has been seizure free but all at the cost of me putting the medication cost on my credit card. We are at wits end. He is working and wants to be a part of society. He will never have a dream job because he cannot work long hours or spend a lot of time commuting or it affects him. Any ideas out there with trying to fight the system.
My son was diagnosed with epilepsy in 2009. Out of the blue, he had a grand mal seizure a month after graduating from college for no apparent reason. No trauma, no drug use, no reason at all. It took over 4 years to get the right combination of medication in order to control his seizures 90% of the time. It was a sleepless four years. He is now on a comination of generic Keppra and name brand Lamictal XR. He tried generic lamictal (Lamotrigine) in many different doseages and for many months, and it stopped his grand mal and simple complex seizures but caused cluster seizures every week. The problem is my son is insured through his employer but his copay for the Lamictal is still $511 a month. It was over $600 with CVS, but we now switched to Walgreens. My son cannot afford $511 a month for the rest of his life. I am a single mom and cannot afford it either. Our doctor has filed two appeals on our behalf but both have been denied by BlueCross CareFirst. My son and I have contacted the pharmaceutical company, prescription assistance companies, the health department, etc. and he cannot get any help. We feel as if the rug has been pulled out from underneath him. For the last six months he has been seizure free but all at the cost of me putting the medication cost on my credit card. We are at wits end. He is working and wants to be a part of society. He will never have a dream job because he cannot work long hours or spend a lot of time commuting or it affects him. Any ideas out there with trying to fight the system.
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