My first 3 grand mal seizures i do not recall any kind of "aura". This last one i woke up and found myself a bit confused, but nothing like when i have a full on seizure. I took a nap with my daughter and woke up out of having a grand mal. Do you think this was an aura? Or maybe a smaller seizure?
Question about auras
- Thread starter MaiVal
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
- Messages
- 5,982
- Reaction score
- 993
- Points
- 268
Depending on how bad the seizure is I don't know if I had an aura before it because I usually loose a little bit of time.
I actually didn't know what an aura was until I joined this web-site.
Everyone's auras can be different but when I have one I do tend to be confused, sometimes light headed and have trouble concentrating on things that I'm doing.
Still sometimes I don't realize that the aura is happening. I think I'm too far in going into the seizure that I can't put two and two together. After I come out of the seizure I realize that I did have that aura.
I actually didn't know what an aura was until I joined this web-site.
Everyone's auras can be different but when I have one I do tend to be confused, sometimes light headed and have trouble concentrating on things that I'm doing.
Still sometimes I don't realize that the aura is happening. I think I'm too far in going into the seizure that I can't put two and two together. After I come out of the seizure I realize that I did have that aura.
Aftershock
New
- Messages
- 14
- Reaction score
- 0
- Points
- 0
My auras seem to be more definitive and different depending on the seizure I am about to have. My stroke was right parietal so a peti-mal aura for me start with tingling in my left arm, then a burning feeling in my left hand... that leads to numbness. minutes after the seizure kicks in. if it going to be a grand-mal, I have the same except instead of numbness I get a taste that I compare to touching a 9volt to your tongue! just my experience.
nightowl47
New
- Messages
- 55
- Reaction score
- 1
- Points
- 0
MaiVal,
I am among those few who have never been able to experience an aura of any kind. I so wish that I would be able to get that "feeling" of the before like so many others, just so I don't hurt myself. I, too, have a history of Grand-mal, tonic-clonic, petite mal, partial, nocturnal and the staring types. They are in my frontal lobe memory area & unfortunately for me after doing a 72 hour video monitoring EEG to see if I would be a candidate for the VNS, at this time I am not. The doctors say that I have continual seizure activity going on in my brain and even medications are not stopping the electric charges going on from one side of my brain and back to the other. So basically, I just have to be very careful, and I was given a list of the things for me & my husband to be aware of as far as safety. These doctors were extremely thorough.
However, to be perfectly honest with you, I if you have an aura, be very glad you do so you can get as many warning signs that you need to help in keeping yourself safe. The only things that I have been able to remember is waking up w/ people all around, talking to me only causing me to get more incoherent! Then, of course, for me, I usually have a second one within two hours, speaking of a Grand-mal seizures. That's why I have a prescription for "Ativan" to calm down the muscles and nerves so you can rest. Very Important!
Still, to be able to have my independence again instead of having someone drive you everywhere, to not have the depression and sleep problems would be a superb thing in my life right about now. One thing I have going for me is my two children are grown up now and living on their own and don't have this disabling disease, as I would not wish it on my worst enemy either.
To all who do read this, I will pray for you as I continue to pray for my own self for the ultimate cure against Epilepsy.
Terri
I am among those few who have never been able to experience an aura of any kind. I so wish that I would be able to get that "feeling" of the before like so many others, just so I don't hurt myself. I, too, have a history of Grand-mal, tonic-clonic, petite mal, partial, nocturnal and the staring types. They are in my frontal lobe memory area & unfortunately for me after doing a 72 hour video monitoring EEG to see if I would be a candidate for the VNS, at this time I am not. The doctors say that I have continual seizure activity going on in my brain and even medications are not stopping the electric charges going on from one side of my brain and back to the other. So basically, I just have to be very careful, and I was given a list of the things for me & my husband to be aware of as far as safety. These doctors were extremely thorough.
However, to be perfectly honest with you, I if you have an aura, be very glad you do so you can get as many warning signs that you need to help in keeping yourself safe. The only things that I have been able to remember is waking up w/ people all around, talking to me only causing me to get more incoherent! Then, of course, for me, I usually have a second one within two hours, speaking of a Grand-mal seizures. That's why I have a prescription for "Ativan" to calm down the muscles and nerves so you can rest. Very Important!
Still, to be able to have my independence again instead of having someone drive you everywhere, to not have the depression and sleep problems would be a superb thing in my life right about now. One thing I have going for me is my two children are grown up now and living on their own and don't have this disabling disease, as I would not wish it on my worst enemy either.
To all who do read this, I will pray for you as I continue to pray for my own self for the ultimate cure against Epilepsy.
Terri
N Sperlo
Veteran
- Messages
- 1,181
- Reaction score
- 5
- Points
- 163
MaiVal,
I am dealing with auras now. Luckily that is all I'm dealing with. They all feel the same for me. Kind of a deja-vu feeling. I can only remember that it happened. The specifics, I can't. Usually a word that means what it doesn't. Everything makes sense in my aura. When I put it to words, my wife repeats the... very interesting things I said. Every song is about me, and I tell her exactly how. When she repeats it back to me, at points I feel I am actually simply insane.
Its one of those things that you just may know when it happens, but maybe not. Who knows. I sure don't.
I am dealing with auras now. Luckily that is all I'm dealing with. They all feel the same for me. Kind of a deja-vu feeling. I can only remember that it happened. The specifics, I can't. Usually a word that means what it doesn't. Everything makes sense in my aura. When I put it to words, my wife repeats the... very interesting things I said. Every song is about me, and I tell her exactly how. When she repeats it back to me, at points I feel I am actually simply insane.
Its one of those things that you just may know when it happens, but maybe not. Who knows. I sure don't.
Maival,
I have Auras that are duja-vu and fear doom- like.
I had 5 full-blown seizures, one after another. I sorta remember having an Aura before hand. very short.and brief.( usually it's quite strong)
Weird thing about these seizures, is that I can remember some of it, so uncomfortable and scary it's so internal and hard to explain. The after effects are just as bad or even worse that the seizure itself. I always bite my tongue and it still hurts
. I get really depressed and can't remember the simple things I do all the time. like my passwords, spelling and people names. I need to think about what I do for a few minutes before I do something. I'm feeling a little better, depression has subsided. but the fear,and the horrible feeling of haveing it freaks me out. and it's been a week saturday.
I know what caused me to have my seizures. I was drinking the night before. way too many.
I'm angry with myself. my doc isn't very happy with me either.
I need to find other activities to do besides going to the bars.
Any suggestions are greatly appreciated.
I have Auras that are duja-vu and fear doom- like.
I had 5 full-blown seizures, one after another. I sorta remember having an Aura before hand. very short.and brief.( usually it's quite strong)
Weird thing about these seizures, is that I can remember some of it, so uncomfortable and scary it's so internal and hard to explain. The after effects are just as bad or even worse that the seizure itself. I always bite my tongue and it still hurts
. I get really depressed and can't remember the simple things I do all the time. like my passwords, spelling and people names. I need to think about what I do for a few minutes before I do something. I'm feeling a little better, depression has subsided. but the fear,and the horrible feeling of haveing it freaks me out. and it's been a week saturday. I know what caused me to have my seizures. I was drinking the night before. way too many.
I'm angry with myself. my doc isn't very happy with me either.
I need to find other activities to do besides going to the bars.
Any suggestions are greatly appreciated.
nightowl47
New
- Messages
- 55
- Reaction score
- 1
- Points
- 0
To Nelly;
I understand how you feel...been there done that, gone through it...I lost weight, ended up with my husband wanting a divorce, then I started hanging out at bars, drinking and having a great time. I was still taking my seizure medications but never had any effects. Over time though I started developing bouts of depression and one morning I had a seizure while driving on my way to work. That really started it all for me on the downhill, as I lost my license due to seizures, then I really drank, but one thing I did do positive was file for Social Security Disability. Too many times I ended up in the ER by drinking, but I was very lucky. I quit cold turkey October 2010, and to this day I haven't had or even desired a drink.
I really think that the point I am trying to get at is this, it's a very dangerous combination of mixing seizure medications with any type of alcohol. Eventually, it does catch up to you.
If you have any questions feel free to message me.
Wishing you my best,
Terri
I understand how you feel...been there done that, gone through it...I lost weight, ended up with my husband wanting a divorce, then I started hanging out at bars, drinking and having a great time. I was still taking my seizure medications but never had any effects. Over time though I started developing bouts of depression and one morning I had a seizure while driving on my way to work. That really started it all for me on the downhill, as I lost my license due to seizures, then I really drank, but one thing I did do positive was file for Social Security Disability. Too many times I ended up in the ER by drinking, but I was very lucky. I quit cold turkey October 2010, and to this day I haven't had or even desired a drink.
I really think that the point I am trying to get at is this, it's a very dangerous combination of mixing seizure medications with any type of alcohol. Eventually, it does catch up to you.
If you have any questions feel free to message me.
Wishing you my best,
Terri