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- Thread starter bklyndeb
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Rae1889
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Not sure what you mean by worse.
And I'm going to have to say that yes at some point in your life you will have a grand mal *called toninc clonic now*
Majority of people with E will have it escalate to one, and that sucks, but I'm just trying to give you an honest answer,
The amount of people who have never experienced one is small. And I'd say that those people will eventually have one too.
But stay proactive about your health and lifestyle and you can make controlling your E better
Hello Rae,
What i meant my worse is totally losing control and ending up in an ambulance or hospital before realizing what happened. I am just learning about epilepsy but what i have heard is that tonic clonic are the hardest to deal with. I could be wrong.
What i meant my worse is totally losing control and ending up in an ambulance or hospital before realizing what happened. I am just learning about epilepsy but what i have heard is that tonic clonic are the hardest to deal with. I could be wrong.
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Here's the breakdown of the kinds of seizure disorders among people with epilepsy:
-- Complex partial seizures - 40%
-- Simple partial seizures - 20%
-- Primary generalized tonic-clonic seizures - 20%
-- Absence seizures - 10%
-- Other seizure types - 10%
So it's not entirely a given that complex seizures will eventually evolve into tonic-clonics. (The numbers for T-C's would be much higher then, even taking into consideration that people can have more than one kind of seizure disorder, or that one kind can progress to another). It IS however a very real concern, especially if you notice that your complex partials are escalating in frequency or duration. That's one reason to keep trying to find a way to control your seizures, whether through medication or through diet/neurofeedback.
As to whether tonic-clonics are the hardest to deal with? It depends on the individual and their situation. I have tonic-clonics, but they tend to respond well to medication and so do I, so my seizures are well-controlled. Tonic-clonics can be dramatic, but unless you haven't yet been diagnosed with epilepsy, or injure yourself while having one, a trip to the ER isn't always necessary. I think comparing seizure disorders and an individual's experience of them can be like comparing apples and oranges, but I do feel like my particular situation is in some ways easier than those who are having partials all the time.
-- Complex partial seizures - 40%
-- Simple partial seizures - 20%
-- Primary generalized tonic-clonic seizures - 20%
-- Absence seizures - 10%
-- Other seizure types - 10%
So it's not entirely a given that complex seizures will eventually evolve into tonic-clonics. (The numbers for T-C's would be much higher then, even taking into consideration that people can have more than one kind of seizure disorder, or that one kind can progress to another). It IS however a very real concern, especially if you notice that your complex partials are escalating in frequency or duration. That's one reason to keep trying to find a way to control your seizures, whether through medication or through diet/neurofeedback.
As to whether tonic-clonics are the hardest to deal with? It depends on the individual and their situation. I have tonic-clonics, but they tend to respond well to medication and so do I, so my seizures are well-controlled. Tonic-clonics can be dramatic, but unless you haven't yet been diagnosed with epilepsy, or injure yourself while having one, a trip to the ER isn't always necessary. I think comparing seizure disorders and an individual's experience of them can be like comparing apples and oranges, but I do feel like my particular situation is in some ways easier than those who are having partials all the time.
Rae1889
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I guess it would be up to each person whats harder to deal with.
Some people find the multiple frequent simple partials harder to deal with because they happen more often than a single tonic clonic would. and they are concious during the simple partials and sometimes those are just as bad. I know I would rather have a tonic clonic than a fear seizure *also a simple partial*
as far as losing control, oddly enough, when the question was asked if people lose bladder control, more often than not people dont. its heard of but not a given. If you mean losing control over your limps, then yes. that will happen. Sadly its a reality that we all have to be ready for and the first few times are scary as hell. now most times Im more embarrased for the people who had to watch than for myseld.
Some people find the multiple frequent simple partials harder to deal with because they happen more often than a single tonic clonic would. and they are concious during the simple partials and sometimes those are just as bad. I know I would rather have a tonic clonic than a fear seizure *also a simple partial*
as far as losing control, oddly enough, when the question was asked if people lose bladder control, more often than not people dont. its heard of but not a given. If you mean losing control over your limps, then yes. that will happen. Sadly its a reality that we all have to be ready for and the first few times are scary as hell. now most times Im more embarrased for the people who had to watch than for myseld.
dfwtexas
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I got diagnosed two years ago. So far all my seizures have been simple and complex partials. Is there a chance that the kind of seizures I have could change...sure. But I am being pro-active in identifying my triggers and avoiding the chances of a seizure. I take my seizures meds like clockwork and tell my neuro if I have a seizure so my meds can be adjusted as needed.
I know this is a possiblilty, but I don't let it rule my life.
I know this is a possiblilty, but I don't let it rule my life.
Thank you all for your reply. Yes i am trying to stay positive and i am doing a lot better than i was when i was first diagnosed. I went from crying everyday to crying once a week LOL. Also keep in mind i am pregnant so dealing with all of this in one shot. Hormones going crazy. I just asked the question because i am scared and trying to learn more. I just hope this new diagnosis does not keep me from living day to day. I am becoming a mommy and want to make sure my baby will be safe if they are home alone with me.