It's been a while since I posted, but just wanted to catch anyone up who is interested.
My 6 year-old daughter was recently diagnosed with Rasmussen's Encephalitis and I wanted to share the knowledge that I have gained over the past few months with others, and this is the only way that I know how.
If your child has continuous twitching, and partial seizures (even if they don't seem bad and are only short simple partial seizures), please read about Rasmussen's Encephalitis or Rasmussen's Syndrome.
Although each child presents symptoms differently, Epilepsia Partialis Continua (Continuous Partial Epilepsy or Constant twitching) is a classic sign of RE. Along with Focal, Partial Seizures that may or may not go status and may or may not generalize.
If you are seeing any of this, please google the disease, or you can also read what I have documented about my daughter's case at http://jessiekelley.blogspot.com/
The treatment for RE is a hemispherectomy. She will be having hers at Johns Hopkins as soon as it can be scheduled.
Best to everyone. Cris
My 6 year-old daughter was recently diagnosed with Rasmussen's Encephalitis and I wanted to share the knowledge that I have gained over the past few months with others, and this is the only way that I know how.
If your child has continuous twitching, and partial seizures (even if they don't seem bad and are only short simple partial seizures), please read about Rasmussen's Encephalitis or Rasmussen's Syndrome.
Although each child presents symptoms differently, Epilepsia Partialis Continua (Continuous Partial Epilepsy or Constant twitching) is a classic sign of RE. Along with Focal, Partial Seizures that may or may not go status and may or may not generalize.
If you are seeing any of this, please google the disease, or you can also read what I have documented about my daughter's case at http://jessiekelley.blogspot.com/
The treatment for RE is a hemispherectomy. She will be having hers at Johns Hopkins as soon as it can be scheduled.
Best to everyone. Cris
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