As I write this I'm experiencing flashing in my left peripheral vision, I know I'm not crazy and it's been going on for three days now. I have stopped my Keppra xr, I would rather deal deal with the known than play around with all the side effects that are not only continuous but more damaging and unexplainable. I believe everyone who post here wants to hear that everything going to change and get better. I believe it will, it has to. Thanks to everyone here, your not crazy, toxic is the word.
really need help... feel like im the only 1 with this!
- Thread starter Hand of Blood
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MaeDae
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May I add, that I was going to give up too. But a few people here reached out and helped me feel better about me first and then helped me to understand the importance of fighting for me. Thank you Nakoma, Aleya, Chaz1 and everyone else for your support. So you must continue. Im sure we (you and I) will find that special Dr. (a God send, im sure) that will take the time to listen to us and then do what is best for us. I cant find the words to explain how I feel when telling the Dr's or anyone else. I just say what my heart says, what comes to mind. I dont understand the different types of seizures, why they happen, what part of my brain its effecting, I only know that something is not right. Again, Good luck to you and anyone else going thru this right now! I guess good luck to us all!
Hand of Blood
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thanks everyone!
well on 30 march i will be a year free from tonic clonic lets hope it stays that way!
but as for the side effects and what i can only assum is auras they will be something im going to have to get sorted.... cause ignore it isnt helping, hiding away ( which is what im doing now ) isnt helping, my depression prob doesnt help neither.... i just really want to get to the bottom of feeling so bad everyday, im sooooo scared of changing my tabs as im near a year free i dunno what to do!
well on 30 march i will be a year free from tonic clonic lets hope it stays that way!
but as for the side effects and what i can only assum is auras they will be something im going to have to get sorted.... cause ignore it isnt helping, hiding away ( which is what im doing now ) isnt helping, my depression prob doesnt help neither.... i just really want to get to the bottom of feeling so bad everyday, im sooooo scared of changing my tabs as im near a year free i dunno what to do!
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HOB: I hear you, changing can feel like a life or death decision sometimes if things are working. How about increasing a dose rather than changing them? or, adding a drug in a small dose to help with the partials rather than changing? I've tried lamotrigine (lamictal) for my partials and it's working pretty good so far (lessening the amount of them).
AND WOOHOO good for you! My 1-year-free of tonic clonics is March 23! Too bad you're not so far away we could celebrate (I LOVE the year marks, feels so good).