Regrets
- Thread starter vagellie
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Hi vagellie,
I had a temporal lobectomy years ago to no avail. And yes, I do regret having it done. It did effect my memory and made me very, very depressed, so much so that I even have mood swings to this day. I was only seizure-free for 14 months and then they came back with vengeance. Now I have the Vagus Nerve Stimulator and it helps.
{{{HUGS}}}
cadsgj
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I suppose one can wish they did not have surgery, but what i had learned in my early epilepsy life is that seizures (for me at least) and brain damage slowly got worse, and worse... the longer I would have waited, my brain would have taken more of a hit than the results of surgery brought about. I think if I could look at results of either choice, surgery was really my only option.
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cadsgj,
vagellie and I DO wish we didn't have surgery, like we both said! The surgery DID cause more damage to my hippocampus and if I had a 2nd surgery, the surgeon told me I could end up like an end stage Alzheimer's patient--- no memories left. If I had not had the surgery in the first place, I would not have the memory problems I now have, I would not have the depression I now have and the seizures would not have progressed to tonic-clonic.
Glad surgery was YOUR only option! It is not for everyone!!
vagellie and I DO wish we didn't have surgery, like we both said! The surgery DID cause more damage to my hippocampus and if I had a 2nd surgery, the surgeon told me I could end up like an end stage Alzheimer's patient--- no memories left. If I had not had the surgery in the first place, I would not have the memory problems I now have, I would not have the depression I now have and the seizures would not have progressed to tonic-clonic.
Glad surgery was YOUR only option! It is not for everyone!!
seizuregirl
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If I could go back and show myself what I've become because of having surgery, I wouldn't have had it done.
I had surgery on my right front temporal lobe and my hippocampus. And because of that, my short-term memory is basically gone.
I'm still having seizures, and depression too, that for me, is difficult to describe to dr's or family for them to understand. But if I had been told of the VNS or the RNS instead, I probably would have chosen 1 of them over surgery.
I had surgery on my right front temporal lobe and my hippocampus. And because of that, my short-term memory is basically gone.
I'm still having seizures, and depression too, that for me, is difficult to describe to dr's or family for them to understand. But if I had been told of the VNS or the RNS instead, I probably would have chosen 1 of them over surgery.
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I was told that I couldn't have surgery as my seizures come from both sides of my brain and honestly I refuse to have it done. I would rather live with the seizures than be depressed or worse. Nothing against you guys but I always fear something terrible would happen in a surgery which is possible.